The Many Faces Of Dystonia
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Uploaded by luvslulu on Jun 13, 2008
Dystonia
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I have had spasmodic torticollis for over 10 years. My head pulls to the right and I also have facial tremors that may or may not be part of my dystonia. I am 59 years old. This disease causes isolation and depression for me. Some people stare at me or glimpse at my condition and this causes the isolation. I get botox about every 3 months which lasts for about 2 months. The muslce contractions are like a burning sensation. However, I do feel lucky compared to other ST people. God Bless you all.
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chris from oregon early onset focal dystonai in right hand at first then to generalized myoclonus dystonia
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chris from oregon early onset focal dystonai in right hand at first then to generalized myoclonus dystonia
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i hope one day they find a cure for all of you
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A wonderful presentation! A terrible disease! Thank you for putting it here for all to see
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i 2 jus recently diagnosed wit cervical dystonia,,,freakn sucks eh,,, i am 28, Cree from Cross Lake, Mb, Canada,,peace to uall n God Bless ;)
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I hope they get well
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great video and great compassion buy you i they all get well
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that little girl in the wheelchair broke my heart
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I had not been in here to see it recently and realized they took off the music.. so I added something from the UTube playlist. No longer is it playing Over The Rainbow by Eva Cassidy, but something just as nice! I hope more and more ppl come and view this video.. and bring more awareness to this dibilitating disease! Thanks,everyone!
Luvslulu
luvslulu 2 years ago
Thank you,LiL'One! This project was a real journey for me, for I got to know these fabulous people almost as well an my own family. Their stories are inspiring!
You can stop the video with the lower right hand button to read the frames better, and then you can resume watching it by clicking on same button.
Remember..WE ALL THANK YOU FOR VIEWING THIS VIDEO!
A DYSTONIA CURE IS OUR PRIORITY..
ONE DAY AT A TIME..
ONE PERSON AT A TIME..
ONE NEW DISCOVERY AT A TIME.
Luvslulu..aka Nana P!!!
luvslulu 3 years ago