Me and my Mom talk about Epidermolysis Bullosa

In November 2008, the Alberta Children's Hospital held a radiothon to raise money. Me and my mom were chosen as guest speakers. A couple months beforehand, a few people came to my house and interviewed us. They then put the interviews to music and played them throughout the first week of November.

Also, don't complain about the terrible music, I can't do anything about it...

Category:

People & Blogs

Tags:

• alberta
• childrens
• hospital
• epidermolysis
• bullosa
• butterfly
• disease
• the
• boy
• whose
• skin
• fell
• off

[rscrash94]

Hey, you're not joking about this are you? I've had people joke about this kind of stuff, which is lol worthy, but I NEED to know. Not really. But I want to. - rscrash94 (I say my username to make it sound personal xD)

[FlailingLemur]

Nope. No jokes.

[masterblue20xx]

Haha you don't have an annoying voice as you said xD. And really nice video =P (considering that I've done my research already on what you have). Hearing it come from the horses mouth [so to speak] was nice and I rather enjoyed this video.

[FlailingLemur]

Thanks! ^_^

[shawnabgoode]

way to go bud! it's kids like u who make drs want to work to cure a disease.

[txpuryear]

he dayln im 11 yrs ol and i have the exact same thang i really hate it but i go on with life and you have really hellped me stay possidive about this but i have it on the bottom of my feet so i cant walk ever but i can still swim and stuff but i really apriceat it man thx

[rscrash94]

Mmmmmmmmkay.

Well, it could be worse. You could be a girl, then realise the hard way that waxing is probably not the best way to remove hair...

[Pivotfan808]

Hi Dylan, its pretty great that you spoke out about this, it seems, life must be awfully... awful, the fact that you can stay positive and be confident is really amazing. Your moms right, your a awesome guy. (I'm Obi-wan Cannoli BTW)

[FlailingLemur]

Hehe, thanks a lot man! It means a lot to me ^_^