Friends and Heroes, What about Love? Portia's Song - Our Story

A short film, of my interpretation of the beautiful Portia's Song from Friends and Heroes. It features my wonderful daughter Millie and her story from birth to now. Millie was in intensive care at 5 1/2 weeks with heart failure and the road since has been a very rocky one. Millie has Alstrom Syndrome, she is registered blind and will continue to battle many severe medical conditions. She has and continues to inspire and amaze, we don't know the future but we will not waste the present. Millie I adore and love you. http://www.justgiving.com/michellehough is the link to my just giving page. I am undertaking a 1000k walk from Spain to the UK in July 2013 in aid or Alstrom UK if you would like to sponsor me please take a look Thank you xxxx

You can also see a couple of clips of Millie if you look at my favourites. Please also consider joining the Organ Donor Register www.uktransplant.org.uk and let the gift of life go on.
If you would like to find out more information on Alstrom Syndrome please get in touch with www.alstrom.org.uk

Category:

People & Blogs

Tags:

• Portia's Song
• What about love
• God
• Prayer
• Religion
• Millie
• Story
• Song
• Frienda and Heroes
• kidney
• heart
• transplant
• Heroes (TV Series)
• Raising Awarenss
• Charity
• competition
• donation
• heart failure
• Video
• Slideshow
• contest
• Love Story
• Guide dog
• Family
• Journey
• Alstrom
• Syndrome
• Rare
• Buddy
• Ciliopathy
• Hough

[121Loopyloo]

My cousin has alstrom syndrome and although it's rare I know that doesnt mean its not important, I'm so proud of all he's done, of the brave man he's become, he's blind, deaf and has the rest of the symptoms of alstrom, but music is his inspiration, there are no barriers, he makes pottery now, one piece was displayed in the walker art gallery, I'm on a mission on twitter to raise awareness, please follow me and retweet, within temptation and 3 authors already have retweeted<3 @loopyloo121 xxxxx

[hohoho291]

@121Loopyloo Your cousin I am sure is proud of you too for working so hard to raise awareness. I think I have met your cousin at the annual conference, that is amazing to get a piece of pottery displayed, that is a awesome achievement. will find you on twitter, keep up the good work. xxx

[ilovesprouts1]

waht a brave srong family xx

[hohoho291]

@ilovesprouts1 Thank you, and what a great user name, I love sprouts too. xx

[hohoho291]

Hi grumpydad1000, thankyou for you lovely words, yes it would be amazing if people did register to be donors after seeing this. x

[pikeymayfield]

Just Beautiful Michelle , I am trying to get as many as ppl as i can to watch the video, I hope you manage to win the £10000 but as you say just raising the awareness is important as well, Millie is just so gorgeous and such a inspiration

lots of love Deane

[hohoho291]

@pikeymayfield Thank you Deane, that is very kind of you, she is a georgous girl (like to think she takes after her mum ) Love to you too Michelle

[Sweetness42289]

Hi, my youngest sister has Alstrom Syndrome. She will be 3 March 5th. God Bless your family. Do you have a Facebook account?

[beautifulprincessmom]

We love your story and your video. And although we are SUPER excited... Sean was sad Millie's story didn't win... (bittersweet for us). We will continue to pray for her and your family, and hope we can keep in touch somehow. God Bless, Tami and Sean

[121Loopyloo]

@hohoho291 Thank you :) and I posted this onto facebook and so many of my friends were touched by this video and I think you are all so brave and strong :) best wishes for the future :) xxx

[grumpydad1000]

what a beautiful video and song, and what a inspiring person you are to create this. I hope this encourages people to become organ donors. I wish you all the best for the future, Millie is so adorable. xx