Decannulation!
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My heart goes out to you. My son, Gage, will be going tomorrow to have his decannulation after having his trach for 10+ years. I am so sorry for your loss.
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@sectorsgirl My son also has chd and had a
cdh too.... we went through the same thing....
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So sorry for your loss. Tommy was a beautiful little boy!!! He is an angel now =)
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May his soul rest in peace...
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im so sorry for the loss. he was a gorgouse little one. prayers and peace for tommy and the family.xxx
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I am so sorry. God rest his soul. Im sure hes at peace and in a better place.
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I can't help but wonder if his life would have been prolonged if the trach wasn't taken out. Did they take it out too soon?
becausethenight1 1 year ago
@becausethenight1 Not exactly. Everything pointed to Tommy being ready, however, he got bronchopneumonia a few days later and the trach was put back in. Trach or no trach, he would have died. Thanks for the concern. I know with every fiber of my being that everything was done right for my son.
sectorsgirl 1 year ago
how is tommy doing after the trach was taken out ?
allets7 3 years ago
Tommy had many other issues besides the trach including lung damage and congenital heart defects. Sadly, Tommy passed away unexpectedly on August 20, 2008, just 9 days after his decannulation.
sectorsgirl 3 years ago