Epilepsy (song) : 100 years by Five for Fighting

Marielle is a beautiful 12 yr old girl. She was diagnosed July 4th 2007 with MTLE ~w~ Hippocampus Atrophy. Life has changed dramatically.
Marielle is no exception in the world of E, She has sufffered greatly across the board. She has several kinds of seizures. NOW currently diagnosed with Grand Mal (GTC), Complex and Simple Partial, Abscence, and Myclonic jerks.

Here is the first video we made to share her story after being diagnosed with MTLE~Hippocampus Atrophy.
At the time I made this video I was so unaware of what was to come...although I know much more today...I understand its all just a part of the journey. Everyone affected by seizures understands the Journey I speak of, every story is different..and yet one thing all remains the same.... Those suffering from seizures for whatever reason ARE HEROS....especially the children. Those that have lost thier lives to Seizures.... I believe are angels that watch over us everyday.

Category:

People & Blogs

Tags:

• Epilespy
• Seizures
• in
• children
• 100
• years
• Five
• for
• Fighting
• mesial
• sclerosis
• uncontrolled
• seizures
• myclonic
• jerks
• simple
• partial
• complex
• parital
• grand
• mal
• abscence
• hippocampus
• atrophy

[my9pandas]

Thank you everyone for your continued support.

Let's all remember NOVEMBER is Epilepsy awareness month.

Much love,

Karin and Mari

P.S.

essell0903

And tinycupcake35

You TWO are amazing. Thx for sharing your stories. I am looking forward to getting to know the two of you. Remember You're NOT ALONE!

[my9pandas]

Our puter crashed and albiet took me a bit I have us back online again.

Thank you for the supportive comments. Mari is always encouraged when others share their story too~THANK YOU FOR YOUR COURAGE & STRENGTH!!! I am always encouraged to hear from the family members of loved ones fighting this battle too. MUCH LOVE TO ALL OF YOU!

**HUGS****HUGS****HUGS****HUGS­**

(For those nasty comments:I feel sorry for you) May God be with you.

[girlgoalie87]

@my9pandas her video was completely my life. i was finally diagnosed at the ripe of age of 35 with juvenile myoclonic epilepy. but my epilepsy started the same as hers. i posted your video on my facebook page. my seizures are same and i keep going and going like the energizer bunny. being older, i guess my attitude is more positive because i have had it a lot longer but i remember that first one. as long as we remain positive we will be positive

[my9pandas]

@girlgoalie87

WOW amazing story! THANK YOU FOR YOUR COURAGE TO SPEAK UP.....

AS LONG as WE SPEAK UP IT CAN'T STAY IN THE DARKNESS!

ITS PEOPLE LIKE YOU THAT KEEP ENCOURAGING HER EVERYDAY!!!

Mucho Gracias

[animalcrazysineadc]

hi - this really did touch me as i'm 16 and have been having 'grand-mals' for 6 months. the doctors aren't 100% sure it is definately epilepsy because most of the symptons dont match up =\ it ruined my exam results ( well not completely - ) because i was in and out of hospital for 3 months prior to my exams. now im going college and it has made it orse as im 2 months behind on work and it is pretty impossible to catch up

[HisPrincess2016]

This video really touched me because i am 14 but i also have epilepsy. I have grand mal seizures. I am very glad that Marielle is not letting this get to her. As long as she has people like you in her life to encourage her to be strong, she will be fine. She is a very beautiful and strong girl. I was diagnosed in August of 2011. My first seizure lasted 15 minutes long. I am praying for her and you also. Stay strong because with people like you we can overcome epilepsy.

[kimmymummy1]

my 1 year old son is being tested with it and this video has made me feel mutch better

[TheEpileptic1]

Awesome! 

[Prinnycakes]

I was recently admitted to an epilepsy clinic, I noticed a lot of girls with it have similar features and I was told that some of us have an extra X chromosome? Pretty interesting stuff.

[essell0903]

Thank you so much for posting this. I always say "I have Epilepsy but it doesn't have me". When my "staring" (absence) seizures began as a child, I was diagnosed. I was clear for about 15 years, but then it returned with a vengeance. We need to stop the stigma. Bless you and bless Mari. She is strong, and beautiful, just as you are.

[tinycupcake35]

I was diagnosed with epilepsy when I was 3 and now I'm 16 and I still have it. I guess i was never meant to drive a car like my big brother does. I hate Epilepsy I always scared im going to have a grand mal because i had tons of them. I had my first grand mal when i was on a field trip. Nobody ever treated me the same, they always were saying stuff about finally my mom said we will homeschool you. I'm glad she made that choice. If feel so much pain. I hate seizures.

[brok3nhop3]

Don't hate on me for saying this, but what is epilepsy again? I used to know a friend that had it, but he didn't talk about it, and I just left it at that because I know the pain of telling something that you don't like. For instance, I am completely colorblind and having trouble in school because of it. However, my friend moved last year, and I feel bad not knowing what it is.

[emotionalrawrrz]

U are an amazingly strong and beautiful girl I was diagnosed epileptic last November and I'm beginning to experience both complex and gran mal seizures. I had one today at school and I'm beginning to get them at work. It's very difficult sweety but we got this we are strong. No one knows the pain of epilepsy till you feel it. Keep pushing girlie I'm holding on with you