You Are Not Alone- Video of ACCers
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Uploader Comments (lynny1206)
All Comments (15)
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@hunter12433 sadly i know how you feel:( alot of doctors treat me like a defective human or an idiot.. talking DOWN at me not to me. I now refuse and MRIs or head CTs for this reason. we are still HUMAN BEINGS! i want to fel normal, not defective.
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i have ACC but sure as hell aint telling my friends or people i know this is something i dont feel comfortable talkin about and my mom thinks i want it rubbed in my face to hear stories how people cope with it i just cant put myself too even talk to anyone about it
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I have
C-ACC
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I am a 16 year old mommy too be with a baby that has ACC.
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@momintex09 Does that happen to everyone w/acc?
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I have ACC,thanks for creating this video.
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@Stingly13 C-ACC means complete agenesis of the corpus callosum, as opposed to some people who have P-ACC (or partial ACC) where there is a partial connection.
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recently diagnosed with ACC...im almost 31...as a child i was told i was lazy (cause i was tired alot) and clumsy (drop things and fell). as an adult when i had the numbess n weakness was told it was stress...was not until i starting having seizures and the numbness got worse did they figure it out....i take meds to control my symptoms, use a wheelchair for outside the out, i have weekly OT and PT but I am doing okay
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What's C-ACC?
5:27
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I have agenesis of the corpus callosum.
Stingly13 2 years ago
thanks so much for commenting and letting me know that you have ACC. We've all gotta stick together whether it be just by letting each other know we have ACC! :)
lynny1206 2 years ago