Lords: Countess of Mar Question on ME lifetime blood ban (8 Nov 2010)

This is a debate in the House of Lords (UK). The Countess of Mar has asked for further information on the reason for the lifetime blood ban now introduced for ME patients in the UK. The purpose of the question was to persuade the Department of Health to be more transparent in its dealings with the public and to ask what progress is being made with research in the UK into this disease.

The ban is to protect the blood supply, but Earl Howe, like the rest of the Government, is misleading the public about this very serious disease and its association with the retrovirus XMRV.

Notice how he cannot say the word leukemia, when talking about Xenotropic murine leukemia virus-related virus (XMRV).

Also, notice how someone has arrange for one person to talk about CBT, as if ME patients were actually receiving treatment on the NHS.




All this is to keep the costs down, and divert a public panic.

Transcript of this can be found here:
http://www.publications.parliament.uk/pa/ld201011/ldhansrd/text/101108-0001.h...

If you want to read a review of were we currently stand on XMRV research, please read this article by Ila Singh. It is accurate, truthful, and up to date.
http://www.mdpi.com/1999-4915/2/11/2404/pdf


Want to learn even more
http://www.mecfsforums.com

Category:

News & Politics

Tags:

• ME
• CFIDS
• CFS
• XMRV
• Blood
• ban
• MRC
• Countess
• of
• Mar
• Earl
• Howe

[edittubev]

The guy at the end of the video, talking about CBT, is Lord Turnberg. Here is a quote from him on Simon Wessely: “It so happens that Professor Wessely and his colleagues have led the field in (CBT). Rather than doing a disservice to patients, Wessely is doing them an enormous service and has devoted much of his life to caring for them. This is a man absolutely committed to caring for those patients”).

(House of Lords: 22nd January 2004: volume 656, number 27, column 1185)

[thx1138mindlock]

Excellent upload, thank you. This will go down in history. Please save this video on CD rom in case it goes 'missing'.

[edittubev]

@thx1138mindlock

Definitely

[edittubev]

Baroness Thornton, Earl Howe - We don't believe you!!!

[edittubev]

Interesting choice of words from one member at 3:14. How will they 'police' this ban? Of course this word is used because the ban has not been introduced to protect the patient, but the blood supply.

[Bluebottle83]

There is no diagnostic test for the physical, neurological illness M.E. because the psychiatric profession have misappropriated all research funding since the 1`980s.

[VivianeOfAvalon]

The UK Government has such 'concern' for their health that ME sufferers are denied a full range of medical testing and increasingly denied sickness benefits, disability living allowance, homecare..fobbed of with CBT that's gobbled up the research money. The UK ME policy is notorious worldwide for neglect and even abuse of physically sick sufferers. Now the UK refuses to use the correct tests to find the XMRV retrovirus in the sufferers and in the blood supply

Shameful but Oh So Predictable.

[theMacvarish]

My partner has ME. More than half the, (NHS), doctors she saw told her that it was not a disease, or a condition but a psychological problem. So If you have a non existant illness you are not permitted to give blood ? Did I understand that correctly ? LOL

[wilyfilms]

What a bunch of loons! I've posted a video of our protest at the Dept of Health.

[wowcolors]

my lords 

[Bluebottle83]

What a cover up of a highly infectious retrovirus, XMRV, now known to affect millions of people worldwide - and spreading. is it from contaminated vaccinations?

[Bluebottle83]

There is no diagnostic test for the physical, neurological illness M.E. because the psychiatric profession have misappropriated all research funding since the 1980s