A Life Without Food, Joshua's Battle with Eosinophilic Esophagitis

This is the story of Joshua. He has severe food allergies and a disease called eosinophilic esophagitis. Please watch his video.
Thank you and may God bless those children with special needs!

Category:

People & Blogs

Tags:

• eosinophilic esophagitis
• eosinophilic gastroenteritis
• EE
• EGD
• EGID
• eosinophilic disease
• food allergies
• food allergy
• g-tube
• feeding tube
• medical formula
• Neocate
• limited diet
• allergies
• brave little boy

[neyo0314]

Where can I find those special brand of lollipops?

[Route2Greatness]

@neyo0314 they are Dum Dum pops. They do have corn syrup in them so they are now a rare thing for Joshua to have ;(



[stanjz]

God bless and heal Joshua, In Jesus' name. Amen.

[Route2Greatness]

@stanjz

Thank you!

[Route2Greatness]

Special Thank You to Neocate Jr., EO-28, and the Nutrica Company for making the special food that keeps our little boy alive.

[Route2Greatness]

Also, thank you to Spangler Candy for making Dum Dum pops, one of the few foods that Joshua can have!!

[maxistheman2]

Curious if you have looked into allergy elimination approaches like BAX3000 or Advanced Allergy Therapeutics.  I know people who have had much success and we may be trying it on our kids who suffer from multiple, severe food allergies.

[gotboredomdotcom]

@Route2Greatness tell little josh that hes not alone, i know someone with the same condition and thats why i would LOVE to work with children like him, show him a guy called joshsundsquist ok maby not the same condition but look at the things he says like one more thing, one more time.....and to any scientist please find the cure or some food they can eat normally

[JennHarris29]

Thank you so much for sharing your story. My son has been undergoing testing for EGID over the past few months and it has been a horrible and terrfying experience. It really helps to know you are not alone and I thank you for sharing.

[cristagno]

Hello. My 3 year old was just diagnosed with EOS. I was wondering if you have any words of encouragement or advice. I'm so scared for her. How is Joshua doing now? Will he have to be on the feeding tube for the rest of his life? I tried to research this as much as possible but I can't seem to find the answers to my questions. Thank you so much and God bless your boy!

[tara6692]

my daughter is on 2 tinsof neocate advanced each night thru her feeding tube in her stomach, she has had this condition since she was 3 months old, she has no food allergies, she has a very rare imune ee, which is very painful, her high power field is over 55, she cant swallow as it is so painful and is on so much medication, she is the only one in Australia with this and the drs are finding it very hard to treat, your son is so cute,

[tara6692]

my daughter is on neocate advanced, she has a very rare imune ee, which is very painful, her high power field is over 55, she cant swallow as it is so painful and is on so much medication, she is the only one in Australia with this and the drs are finding it very hard to treat your son is so cute,

[mandyandsons]

I just found out my son has eosinophilic esophogitis and I am so scared, I cried so much when I saw this video, he is only 6 months old, he is also being tested fo celiac disease and intestinal malrotaion in 48 hours

[domcolski]

So sorry to hear all that! My 20 months old daughter suffers from EGID but we are just starting our long jurney. Why would children age 15 have tubes recently inserted? Is that because of the EE and some scarring/polyps in the esophagus? Would the medicine not help to prevent it? My little one reacts to corn so I'm guessing the medicine is out....not sure just waiting for an appointment to confirm it/scope