Lily Drinking her Drink Solo
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Uploader Comments (kymmee19)
All Comments (12)
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I love this video, lily you are so gorgeous, your parents are so proud of you because this is such an achivement. I would give anything to see my CDKL5 Angel do this too. Well done Monkey!
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I love this video! Lily you are so gorgeous and your parents should be very proud of you. I know how great this is . I would give anything to see my CDKL5 Angel do this too. Well done sweetie.xx
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What a sweet angel!!!!!! Daddy is super sweet too! I LOVE the encouragement!!!!! So many dad's don't even talk to their kids, let alone interact like this! <3 <3 <3 HUGE props to daddy for his invention! And bigger props to Lily for getting this straw from a cup all by herself down pat! <3 Love her!!!!!!!!
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hey guys her brain works just fine........ like urs or mine...she's just haveing trouble expressing out what she feels!!!!! stop w/ the good girl or ur the biggest girl i know...wtf ......now please.....she is way better than that ....you know it...we know it...dont make her feel like that......shes really need's her people to suport,,,,,,, sorry..... bye
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Aww that's sweet
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Good job lily.is she a silent angel?
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she is absolutely adorable! what a pretty girl. "monkey" is my pet name too. :]
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@LamarranaRec hmmmm........ Not sure how to reply to your ignorance. Maybe next time we should act less excited for her learning new ways to be independent in her world. She was only 5 when this video was made, I'm not sure how you were raised but it's totally appropriate to cheer on a 5 year old. Wow. I appreciate your "support" though ........
kymmee19 1 month ago
@xxxAlphaxxx5. Lily has a rare mutation on her CDKL5 very similar to Rett syndrome, some even say she has atypical Rett but she is not classic Rett if that is what you are asking. But she certainly is our silent angel.
kymmee19 1 month ago