Update, Fun Stuff, & Not So Fun Stuff
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9:59
EDS digestive systemby DarkWaterfall590 views- 7:39
Ehlers Danlos Speechby jbentler1619 views
- 8:17
Don't Wait!!!by DarkWaterfall416 views
- 5:32
Show and Tell with Bracing!!by DarkWaterfall5,221 views
- 2:19
EDS Ankle Braceby ufo8mykat1,298 views
- 9:29
Proof of EDS?by DarkWaterfall12,643 views
- 1:03
Importance of talking with others who have EDSby rockerchik761,284 views
- 7:42
dislocations dfinitely make things interestinhby DarkWaterfall7,057 views
- 7:29
Eds Update: New bracing and orthoticsby jkweirich1,021 views
- 3:56
The Proposal Mobileby fenster987,088 views
- 1:05
braces suckby wishwashwonder6,728 views
- 0:27
Hypermobility of Skin & Joints - Signs and Symptoms of EDS?by moblifex19,216 views
- 8:54
Angie singing at Charity event.by angieloves2d610 views
- 4:54
Ehlers Danlos... Advocate for yourself!by jkweirich440 views
- 0:54
Tips on living with Ehlers Danlos Syndrome Type Threeby kandinsky512,438 views
- 7:04
Coping with EDS and Having HOPEby DarkWaterfall510 views
- 1:58
Ehlers Danlos Update-Visited Geneticistby jkweirich923 views
- 9:59
Updates Updates Updates!!!by DarkWaterfall311 views
- 0:59
My Life with Ehlers Danlos Syndromeby vegandanielle9,821 views
- 5:46
Ehlers Danlos Syndromeby surferbuddhist47,320 views
Thank you so much for sharing your trials. My son has been diagnosed with EDS at age 12 and right now both shoulders are permanently out and now he's having issues with a knee. It's very good for him to know that he is not alone.
Hang in there!
goldy700305 2 years ago
LOL! "Unhinged... like my body." Like it.
My body's not unhinged, but sometimes I'm certain all these decades in pain have unhinged my mind.
Yes, it's legal to ask for and receive money, as you often see when families set up accounts to raise money for transplant or health care or memorials. You will have to keep records and claim it on your taxes.
Hope you're having a good summer... and more good days than bad.
longlakeshore 2 years ago
Hey Kerrilynn! Great to hear from you as alwyas, and in such good spirits! I hope you have a wonderful weekend, and I hope those braces get fixed soon! -Matt
crazylegz610 2 years ago
CONGRATS TO YOU AND SHADOW!! HOORAY!!! It's so good to see you looking for happy and beautiful. :):):) It's such an amazing thing when you find someone in this world who truly does know what you're going through. It's wonderful that you had that experience. A great friendship has begun! =D Whoa! That coffee looks pretty good. I used to love coffee...then I got into tea...yerba mate and green tea. But I still enjoy a good, strong cup of coffee on occasion. :):):)
xoxoxo
luv,
jessie
MadMadamJess 2 years ago
Hi Kerrilynn, It was so nice to see you again. :) I am gonna go on facebook and look at the cause! I had no idea they had one for NEADS. Anyway, take care and looking forward to more videos.
ohawkins08 2 years ago
I'm so happy that you found some coffee that you can drink! I'm sure the caffeine isn't great for your POTS though! I also donated my pre-birthday and birthday status on Facebook to help you raise money for NEADS! I asked people to donate my age! We'll see if it works! And I'm sorry to hear about the braces being broken!!! Hang in there!
jkweirich 2 years ago