Alfred Lane, MD, discusses EB research and treatment

What is epidermolysis bullosa (EB)? How do EB patients live with such a devastating disease? What are the current treatments and research? Alfred Lane, MD, is a dermatologist at Lucile Packard Children's Hospital at Stanford and Professor and chair of the department of dermatology, at the Stanford University School of Medicine. In this March 20, 2008 video, Dr. Lane discusses "recessive dystrophic epidermolysis bullosa" (RDEB) and we see video of 11-year-old Garrett Spaulding in his clinic appointment with Anna Bruckner, MD, chief of pediatric dermatology. Packard Children's Hospital in Palo Alto, CA provides the only EB clinic for kids in the Western region of the U.S.

Category:

Science & Technology

Tags:

• epidermolysis
• bullosa
• EB
• dermatology
• RDEB
• Alfred
• Lane
• Lucile
• Packard
• Children's
• Hospital

[IsabelleKathryn]

These kids are true miracles! God bless them. I hope they find a cure soon

[95n96girl]

If this treatment was successful could it work on jeb as well?

[happinesson]

I am in tears.. Why do they have to suffer this way?

[katie30990]

I also have Epidermolysis Bullosa. I hope that this passes and we all can be healed and live a much more normal and healthier life.

[Drezin86]

I, too, have this disease. This is very exciting. I'm hoping to participate in the study.

[frandet2]

Garret and all the children with this desease are a warriorssss!!!!!!!!!!!!!!!!!

little angel

[noviydom56]

Say me please, how to connect with Garrett Spaulding & other who have such deases. In Russia, Orenburg physician`s must help. Excuse me for my English!

orenzdrav@yandex.ru

[peppermintmochas]

I hope they find a cure. Garrett is such a cutie :) hope he and all the other kids/adults with this get better. Pray for help, God listens! :)

[Jesse6566]

I have this disease

[robertlpch]

Interesting interview with Dr. Lane, and Garrett is a very courageous young man. Looking forward to hearing more about the work of Drs. Lane and Bruckner and other EB researchers.