My MS Story

I was recently diagnosed with multiple sclerosis and this video is an introduction and explanation of what happened to me. It's also a tribute to everyone out there on youtube who have shared their stories before me. Thanks!

Category:

People & Blogs

Tags:

• multiple sclerosis
• optic neuritis
• MS
• symptoms
• diagnosis

[Venom7707]

it vary's in different people I have had MS for 8 years and it affects the right side of my body. At the precise moment I am in England but will soon go to a country near the equator which in fact helps me alot and when I come back my doc is just really amazed to see the improvements in me in fact my neurologist told me if you had been born over there then MS would not have been the case. So my advice is to go places which are closer to the equator or try to spend alot of time outside in the sun

[eclipsedeyes]

Hi Venom7707. I've lived close to the equator since birth and I burn very easily and live in a country with very high skin cancer rates so I tend to avoid the sun. However in winter I've been taking some time to sit in the sun on sunny afternoons when the UV is low and maybe it helps!

[ToriUTK]

Hi There! Brave video! I go today for my "official" diagnosis and to determine treatment. I am so nervous my stomach hurts. I am go glad you decided to make a video. I think it really helps to connect with others. I don't know anyone who has MS other than than those I have met on youtube. I would be going crazzzzy if I didn't have my youtube friends to compare and contrast with. Keep us updated!!!

XOXO

Tori

[eclipsedeyes]

Thanks so much Tori! I hope everything goes well at your appointment. I know it feels like going in for sentencing sometimes!

[kezzcass]

Well done for putting your story out there. The more stories I hear the more I realise that even though we can have different symptoms it is quite a similar process we go through; strange symptoms to diagnosis, response to having a disease and then the ongoing day-to-day adapting. We all respond differently, at different speeds so the next few months as you learn and are more in tune with what your body is doing you will no doubt learn a lot about yourself. You will be ok. love Kerri xo

[eclipsedeyes]

Thanks for the comment Kerri, I think you're right about it being a similar process. I hope you're doing well right now :)

[SkyBlue1031]

You are a stunningly beautiful girl! Darling, how i feel for you, so young, to have to deal with MS. I was just diagnosed, at 54. all these years weird symptoms that came and went. i want on my headstone I TOLD YOU I WAS SICK. i felt like a hypochondriac, but finally, here i am diagnosed. anyway, i want you to know that mine began at 26, yet i worked full time (still do) and went through graduate school, had a family, etc. wait for symptoms to end, then just keep going! God bless you hon

[opticneuritis]

I have lived with Optic Neuritis now for 6 yrs also in my right eye. I have had on and off again episodes, some more difficult than others & the longest daily episode lasted 8 months. I have not been diagnosed with MS and all 4 of my MRI scans are clear. Contact me if you would like:

Jenn(at)JennDesigns(dot)com

facebook(dot)com/JennEnglish26­.2

[martinclembo]

Hello, I was looking at your videos about your MS story, you are a lovely person, how are things now? I live in the UK what part did you visit? The very best wishes.

Regards Martin

[bangthatdrumb]

Good vid. Hope you're ok.

[Venom7707]

lucky you, australia does have sun in the winter but over in england its a bit like north pole anyways good luck to you. I do hope there is a cure one day, the earlier the better, I am currently in the process of writing a letter to my PM obviosluy gordon brown stating a cure for this condition or benefits for life!

Its really annoying I have the skills, I graduated but can't do the job because of my symptoms.

[jennidee333]

It's so good to see an Australian discussing MS. I'm seeing a Neurologist now to investigate for it as I've had tingling, twitches, blurred vision and weakness. My MRI isn't until June 18th. I HATE the waiting!

[rezza01]

so a physical neuro pass didnt need an MRI since i havent had any optici nuetritis or loss of feeling in hands or legs.

[rezza01]

I have had fasciculation all over my body since nov 08, i also have had tingling in my both soles and fingertips of both hands, plus burning sensations, this all started all of a sudden, i have been to amy GP, a doctor fiends of mine and neuro who have done a physical nuro examination and said that I dont have MS. but my body fascilations (twitches) and tingling dont go, i also feel tried, but no diagnoses which causes me a lot of anxiety. :(