Back From My Hospital Admission

This is about my experience of being admitted to a major London Neurological hospital for more investigations.

Category:

People & Blogs

Tags:

• neurological
• disorder
• involuntary
• movements
• psychogenic
• movement
• conversion
• hysteria

[Bluebottle83]

What disgraceful treatment, no PET or SPECT scan,nothing. The treatment of M.E. patients in this country is cruel and scandalous. It has been classified as a neurological illness of viral origin by the WHO since 1969 & is a well documented physical illness.Despite this a small group of psychiatrists have been allowed to declare it a mental disorder and to use our suffering as their milch cow. The Gibson report advised that they should be investigated as to their involvement with Unum and the DWP

[kaazoom]

That is the problem - ME is a political issue. I am still not sure that I have mE, although I have it seems likely, although not the type the psychiatrists call CFS. I have too many neurological symptoms for them! If you read the accounts of epidemic ME you will see that many had symptoms similar to mine. but the psychiatrists have chosen to ignore history because it suits their cause and that of their insurance paymasters!

[kaazoom]

it is really difficult to be confronted by disbelief and to be told that your illness is all in your mind. one of the problems that I have faced is that all of the neurologists that I have seen have followed the diagnosis of the previous one. They seem unable to accept that acolleague might be wrong and become tunnel visioned. I am really pleased to hear that you have been diagnosed. i hope that you are now getting proper treatment. Regards, Paul

[deadgirldreaming]

I believe your consultant might be suffering from a severe form of psychological illness known as the 'god complex' - this makes sufferers believe that they know everything and have no need to listen to people and believe what they say.

I once mentioned that I was doing some gentle yoga to a consultant - his response 'well stop it then!' Hod e hum

Much Love

xxx

[kaazoom]

I think that most of the consultants at the hospital I attended had a god complex. They also had a 'if other neurologists haven't found anything wrong nothing can be wrong' complex! Easpecially if it involves expensive tests.

[Englander72]

Hi Paul. Sorry you had such a rubbish experience at the hospital. The attitude of some of these people beggars belief. Sooner or later you'll get some answers.

My very best wishes

Jon

[kaazoom]

Thanks Jon. I am sure that I will get some answer eventually. But it looks as if not just yet.

[BabyGurl00818]

Every Dr is so quick to give us medication, despite us needing scans, therapists, whatever alternative. Why bother seeing a dr nowadays? I'd rather admit myself to hospital, than have a dr do it. I think i'd trust myself more.

[julesdownunder]

Those doctors sound very arrogant and ignorant.

Everybody knows stress causes dystonia symptoms to worsen!

This is not psychogenic. I can see that. What sort of fools are they are?

You need to look up a neurologist in your area that specialises in movement disorders & give that mob a miss.

Great your sharing all this.

[AngelinaNYC]

This is very common and abusive treatment by physicians who are convinced we are faking. Feel free to visit our Stiff Person Syndrome Support page on Facebook. If you have reactions to anxiety, loud noise, overworking, heat,

and more, you may have SPS.

Your story is all too familiar to us. We have all been treated like nuts by Drs.

Hang in there. Ask them for test for

Moersch Woltman Disease. (anti GAD antibodies) Keep fighting them. Ciao.

[metromotor]

Think about it KAAZOOM, your symptoms changed when you became more anxious....so there is an overlapping element of somatization.. On the other hand it sounds like your doctors are dickheads ! they have no sympathy...

[wwwFamilyPrideOrg]

How do sleep at night or do these jerky movements subside?

Accept it or turn to Prayer

or Christian Science only 1 people 1 know was healed in 10 year period

[ReineDeLaSeine14]

I was previously diagnosed as psychosomatic. Yeah I have arthritis, and a rare genetic connective tissue disorder and a rare neurological disorder.

The God Complex caused me a lot of damage...both physical and mental. Be weary of it.