Hope for William - EB patient -8

Update From Larina McClain: March 28th 11:00am: So sweet. We, myself, Anim, Nicole (sister) and John (grandpa)spent most of the day with Willy in the NICU. He looked so much better then yesterday. His chin is healing nicely. He does have a lot of new blisters mostly on his face and belly, but they are smaller. His mouth has healed substantially from yesterday and he was able to eat without his mouth bleeding. It was so cute, he just loves to be held! His favorite thing is when grandpa or his mommy sing to him. Thankfully it's not me singing, ha! He is still on Morphine every six hours, but they have switched his bandages changes to every other day. The most important thing right now, is that his hands and feet begin to heal better, his toes are down to bone and it is still very painful for him when these bandages changes take place. Test results have still not come back from New York, so much is still in the air. Anim and Ezra wanted to sincerely thank you all again. They said they are so appreciative of all of your sweet words to them and they thank you so much for the support. It makes me so happy when I see what great friends we have and how many people things like this effect positively. I told my sister I will never complain again! Yep, there I said it!!!!!! Ok yeiks! Ok I had better run, I will keep you all updated!

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• EB
• Epidermolysis Bullosa
• Skin fell off
• hope for william
• Larina McClain
• Butterfly children
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• Butterfly kids
• Butterfly Baby

[Victoriee91]

he's beautiful, I was born with eb simplex and had no skin as a child but things got better as i got older. he will pull through :-)

[ebadvocate]

Willy is beautiful! Hoping for good news on the test results.

I'm an American expat living in Ontario, Canada. I serve on the Executive Committee of DEBRA International and the DEBRA Canada board. DEBRA Canada started International EB Awareness Week in 2009 and now many countries are on-board.

You're in my prayers,

Gena Brumitt