Invisible MS - MS Journey Vlog Entry 13 Sept 2007

I voice a little frustration here with invisible signs of MS. I have thyroid issues and know that they could be playing with my head, too. Nonetheless, invisible MS takes a big toll on me sometimes.

Category:

People & Blogs

Tags:

• MS
• multiple
• sclerosis
• invisible
• symptoms
• cognitive
• issues

[HatchetredSarah]

I have a very hard time with no looking sick. I have a handicapped placard, and I get those looks of "Damn, that bitch is using her granny's car!". The thing is I am 34 , but I honestly look 18ish. I have tattoos, and a Mohawk atm. That's just my personality. I don't feel like I should change my looks for my illness, but sometimes I just want to let my hair grow, cover my tats, and get some old lady clothes. I like your MS vids:) Kelly

[gkygrl]

Don't change yourself to be "the disease" ... MS does not have to be who you are. Be you--individual, tattooed, etc. If the world doesn't understand it, challenge them to open their minds. 

Best wishes!

Diana

[angelusa73]

Oh, I so know what you are talking about!

I have very many cognitive problems and its very hard for me to deal with them because I used to have the best memory ever!

I am super organized so that helps but I not the way I used to be...I hope this can change and that I can get back to myself soon...Thank you so much for sharing this with all of us!

[gkygrl]

I have had a LOT OF HELP through the use of Provigil. It isn't perfect, but it certainly makes me sharper for a period of time. I feel more like myself. If you are not using it, you may want to talk with your neuro about it if fatigue is an issue. Aricept is another option for memory (I have never used that). Best wishes!

Diana

[026jamie]

I was recently diagnosed with MS and was almost relieved. At that point I could prove to these ppl that looked at me as if i were a faker. Since they could not "see" my problems, my 2 yr track to diagnosis was rough. People look at you like you are making it all up and that there is nothing wrong. You just want to scream at them, but the only way to handle it is just to keep moving forward. My long-time bf just thought I had gotten lazy and was making up excuses. lol. I wish!

[RulesTheRoost82]

Hi, I'm Leah. I was recently diagnosed with SP MS and started Betaseron Tiesday. My symptoms were memory loss, fatigue, cognative difficulty, and bad balance issues. I hear what you are saying about it being invisible to everyone else. Whe people say "well you don't look sick", I tell them,"then you must not believe in God either you can't see him." That usually makes them shut up and turn red in embarrassment.

[HuggableAngel]

i find my speech is changing and definately the memory isnt working like it used to , its very frustrating and hard with 4 children , the play tricks on me now making out i didnt hear what they said .. which makes it hard lucky one of my daughters heres the others and sticks up for me lol .... motivation is upsetting me i was such a hyper person ... so im finding that a low point , the pain im handling though it is increasing

[angelusa73]

Thank you for letting me know about this.

I am hoping that this symptom can go away...but if it doesn't, I will ask about Provigil!

Have a good evening,

Angela

[cujojila01]

welcome to the ms disease thats how it is . really your right its part of the disease, the bathroom is the disease issue, all that stuff you know what they dont see ms thats the problem they dont see it they never will see it and never under stand it then you wiill get angery because they dont see it you onlly just begun sorry michelle disabled RN

[Lesabri]

thank you for sharing this. i was just diagnosed a week ago and i am so frustrated and unsure of what's going on.