MY STORY: Celiac Disease

In this video I explain my life journey of growing up with Celiac Disease and not knowing it, as well as the process of how I was diagnosed. Sorry about the low resolution!

http://www.youtube.com/watch?v=bPp4tMNimOc&fmt=18

Follow me on Twitter! http://twitter.com/whitegirlfang

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• Marie Fang

[m522n]

Hi, did u stop gluten free diet for 6 weeks before doing a proper test to confirm your desease? I might have this desease as well, didn't know what is wrong with me all my life.

[whitegirlfang]

@m522n Unfortunately, I changed my diet before being informed that I ought to wait to have the biopsy. Because I have been symptom-free for 5 years now, I have opted not to return to eating gluten to confirm a diagnosis when my symptoms are all gone, but it is best to do the biopsy if you can. I hope you find out what's going on for you soon!

[celtpro]

I can see where you are coming from, though I have had 2 positive blood results, I am going to my family doctor, for referral to the hospital to have a bronchoscopy done of the small intestine.

Though I would much prefer to just go on a Gluten Free diet, as I have had enough procedures done throughout my childhood and also as an adult. Over the last year it is been my worst and this is when I was told that I had Ceoliac Disease.

I have had the bronchoscopy done about 3 months ago in my lung.

[whitegirlfang]

@celtpro Wow you've definitely been through a lot! I wish you the best as you continue this journey and that you're feeling better soon!

[pamprw]

I diagnosed myself because I do not believe in doctors. After a most painfull bout I changed my diet to gluten free and right away began to have elimination which eased the pain. I had gone to the ER in 2009 with all the symptoms but they could not find anything wrong. This is my 3rd week without gluten. I still have some pain but at least I can walk. It always helps to hear someone elses story.

[whitegirlfang]

@pamprw Thank you for your post! I'm sorry to hear about your symptoms and I'm happy to hear that you are beginning to feel somewhat better. I respect your beliefs about doctors, but I do always strongly recommend that everyone be checked out by a doctor before concluding what may be going on. Good luck!

[Dezi1998able]

Wow....I have celiac and my whole life has been switch around my doctor took 3 years to figure I have celiac but I wish the best for you!

[m522n]

Doctors very long route, in addition there might be all sorts of things going on, gluten free diet the option I''ve chose. Nothing to loose anyway, apart from few pieces of bread. Second day, gluten free food. Much much more energetic. My main problem apart from stomach issues was fatigue. Maybe it's placebo effect, but it definately works! Cheerio!

[whitegirlfang]

@PinkHawk191 I'm so glad you were able to find out and that you're already feeling better!

[PinkHawk191]

I was just diagnosed on friday. It;s been hard. I had the blood test and then went on a gluten free diet to see how I felt because my doctor asked me to try it. A couple of days later I felt so much better.I went back for a follow up appointment friday and she said because of my diet and the blood test results coming back positive she diagnosed me with celiac disease. Me and my mom went to whole foods and fresh market and stocked up on the basics of gluten free food. Really happy to not be sick.