Upload

Loading icon Loading...

This video is unavailable.

Ragan's making some progress!!

Sign in to YouTube

Sign in with your Google Account (YouTube, Google+, Gmail, Orkut, Picasa, or Chrome) to like Kasi Thursby's video.

Sign in to YouTube

Sign in with your Google Account (YouTube, Google+, Gmail, Orkut, Picasa, or Chrome) to dislike Kasi Thursby's video.

Sign in to YouTube

Sign in with your Google Account (YouTube, Google+, Gmail, Orkut, Picasa, or Chrome) to add Kasi Thursby's video to your playlist.

Uploaded on Sep 28, 2009

Ragan has global Developmental Delay's. She is 3 and a half years old now. We've been to three different hospitals trying to find out what is preventing her from developing at a normal rate. The National Institutes of Health is the most recent hospital we've visited. They have a new program there called the Undiagnosed Diseases Program. Ragan was the first pediatric patient accepted into the program. After spending an entire week at the NIH and undergoing just about every genetic test you could imagine as well as MRI, EEG, Spinal Tap, Skin Biopsy, Abdominal Ultrasound, etc. we still do not have a diagnosis. She has never had any seizures. The only symptoms she is having is being unable to walk and talk. She is still not feeding herself completely and she still eats sand when we go to the beach. Oh yeah and she's started grinding her teeth. The National Institutes of Health is the largest hospital in the US and it is funded by our tax dollars. They have access to any type of technology, specialist consult, research facilities and yet, they are stumped by Ragan's symptom's. They have deemed Ragan a Medical Mystery for now. She's been photographed for literature for other researcher's. As for now, we are just continuing with therapies and good old fashioned love. I will never stop fighting for an answer, I believe God has a big plan for my little Ragan's visit and it will include a run for being the first female president if I've got anything to do with it. As a mom, I can tell you that I struggle every day with not knowing what is hurting my poor little girl, but as a believer in God, I know that my faith will carry us through. To all the other parents, just watch the other videos I've posted of her and know that you are not alone in your journey to help your child. Sometimes Mom's and Dad's know more on how to help their child than the doctor does and my advice to you is to go with your gut. Never let a doctor tell you to give up and let your child be who they're supposed to be. Because who they are supposed to be is going to happen regardless of you pushing for answers that could someday lead to a treatment for your child. I pray that one day, stem cell therapies will be the key to unlocking that door that holds the directions for them on how to walk, talk, run, play, feed themselves and be just a happy healthy child. After all, that's all we want for our babies, is for them to be happy. Take care and good luck on your journey.

Loading icon Loading...

Loading icon Loading...

Loading icon Loading...

The interactive transcript could not be loaded.

Loading icon Loading...

Loading icon Loading...

Ratings have been disabled for this video.
Rating is available when the video has been rented.
This feature is not available right now. Please try again later.

Loading icon Loading...

Loading...
Working...
to add this to Watch Later

Add to