CFS/ME CDC "Missing My Life"

Video by the American Centre for Disease Control and Prevention about the condition Chronic Fatigue Syndrome/Myalgic Encephalopathy, titled "Missing My Life".

Category:

Howto & Style

Tags:

• CFS
• ME
• CDC

[DrFrankyDolan]

I have had CFS for over half of my life, and have become housebound from it now. I will not stop fighting for help, and for hope, for ALL of us! Please remember that you are not alone. We are in this together, my beautiful friends! ...My body is weak, but my spirit is not!

Day of Visibility June 6:

Our voices will come together as one harmonious chorus across the globe, rising above the ashes of our suffering and shake the ground below us. We will be heard. ...We will be seen!

~Dr Franky Dolan

[Cissy2cute]

The word "fatigue" doesn't even begin to describe the feeling. It's more like your life force has been drained out of your body.

I went to visit relatives yesterday and I will be paying for it the rest of this week :(

[KnightofZeroME]

Those sufferers, caregivers & friends, with Facebook!--ChaseGiving is giving donating money to your favorite charity (up to $500,000).

Search the "Chase Community Giving App" & "Chase Community ['Community Page]" hit "like", and vote for your favorites, including:

***Whittemore Peterson Insitute***

(Biomedical research into M.E.; setting up a clinic & found XMRV/MLV in M.E.);

***American Blue Ribbon Awareness for Myalgic Encephalomyelitis***

***CFIDS Assoc.****

& many others.

[EutuveX]

@pencilpauli

Sorry, "shifting perspective " sounded like taking some actions on a positive way... like my psychiatrist would suggest.... I "shifted " way back ( 1984 ....from one week to the next, my life had changed...and I had no idea how worse it would get with time... sorry again...

[pencilpauli]

@EutuveX

No problem

Had to backtrack to see why I said that and tbh I should have worded the statement more carefully but tiredness etc

I only meant that one needs to try not to feel negatively when seeing others getting on with things.

I understand why people do feel jealous, because I do sometimes too. But ultimately it only leads towards depression if I am not careful, and I try hard not to go there as it is also a horrible place to be.

Guess there are quite a few of us in that boat.

[EutuveX]

@pencilpauli

Dear, sorry for the misunderstanding.... your " shift of perspective " sounded so " it's all in your head.... " as if WE ,the sufferers could DO anything to change or improve our condition...

Sorry again...

You ME ? Myself : CFS and ME ( 15 out of 18 tender points )... When the symptoms started ( 1984 ) my life was gone. Today, I just wonder why haven't I ended it yet...( this comment deserves no reply..so, be the best you can manage )...

[pencilpauli]

@EutuveX

People like who? ME suffers like me you mean?

[EutuveX]

@pencilpauli

a shift of what... ?  can't you people understand .... ? we are hit by a never ending tsunami.... second after second...no time for "shifting "...

[gsgrl2000]

goto my ______ dot com slash gsgrl 2000 for mor info. about ME/CFS

[pencilpauli]

@os100594

fight through it?

sheesh

It isn't always good in the UK either. I know of a teenager whose school offered no support. It's worst for the youngsters that have ME imho

I have had chance to do some things but the kids are really robbed of their youth.

[pencilpauli]

@ladyatomic

Sorry you feel that way

Try to be pleased for them if you can. Don't mean that to sound heartless but a shift of perspective may help a little.

Take care of yourself and I wish you many good days.



[TashaRichardsonFan1]

Is there a cure for this disorder?