ME/CFS : a devastating illness by Greg & Linda Crowhurst

A video entry for the P.A.N.D.O.R.A. Video Contest, that raises awareness of ME/CFS from a carer's and sufferer's perspective and the need to fight for recognition.

Category:

News & Politics

Tags:

• ME/CFS
• PANDORA
• Advocacy
• Music

[vincent4500]

tomme1981=low class ignorant faeces..

[Bluebottle83]

continued........ I do not have CFS & I know these 'treatments' will make me far worse & that the therapists will have been erroneously trained to think that I have a psychiatric disorder. Yet we are offered nothing else- no viral testing & no antivirals, no heart function testing - no tests or treatment of any value at all. All the money has gone to th e psychiatrists. This illness has been proven to cause premature death. Death for me will be far preferable to the living hell of severe M.E

[Ramzyy007]

Please check the trailer on my youtube channel from the FIRST MOVIE ABOUT CFS / ME ! Release on october 8 (2011) "Voices from the Shadows"

[karmakomodia]

I am fighting with you...

[chronicallyfatigued]

Brilliant video!

I am a young sufferer of this awful condition, and have a channel of awareness videos which i would be overjoyed if you would check out! Well done again! x

[lucylou780]

ive sufferered significantly for 7yrs i am completely bed bound and confined to my bed 24 hrs a day and i am only 32 with 3 young sons i cant look after myself and cannot manage simple things people take for granted at times i cant feed myself i need 24 hr care i cant wash n dreess or go to the toilet etc my life has been destroyed i have no quality of life at all i have no control over my own life its in my carers hands its tore my family apart

[essy111]

Hi there I recommend a really great book out there called "THE JOURNEY THROUGH ME!CHRONIC FATIGUE" By Janet Hurrell. Its an A to Z packed with the best information on diet contacts of health food shops practitioners and much more. U can get it on Auther House or Amazen. Other then that Licorice tea herb is an uplifitng tea to give you more energy

[essy111]

Hi there I recommend a really great book out there called "THE JOURNEY THROUGH ME?CHRONIC FATIGUE" By Janet Hurrell. Its an A to Z packed with the best information on diet contacts of health food shops practitioners and much more. U can get it on Auther House or Amazen. Other then that Licorice tea herb is an uplifitng tea to give you more energy

[JasmineMarieHudson]

Ohh and I'm not advertising I'm really trying to help I was sevearly ill and depressed for a year but I have it 5 altogether but I hope someone will try it as it might make some difference it really did for me :)

[JasmineMarieHudson]

I have had me/cfs for 5 years and it's litterally ruined my life I can't go school I was meant to have my gcse's this year but iv missed too much so I had to drop out, I'm just getting over it thanks to this health stuff made out if fruits and seaweed and I don't feel I have m.e anymore :) it's called berry.en if anyone want to give it a go, but it tastes vile :( and is expensive but really helps

[hoppytherabbit1]

Just to add, my partner was struck down at the same time with a virus and both of us came down with CFS. My partner had CFS for around 7 months, I had it for 2.5 years.

[hoppytherabbit1]

I had CFS for over 2 1/2 years. I have come through the other side now. It was the most horrible experience I have ever gone through. Please anyone with this illness do not pay for treatments! They will not work. You can get through this but don't expect a fast fix. I research vitamins and found the ones that helped me to recover and an exercise programme I gave myself also helped. Don't give up !