Sarah's POTS Story Part II

This video tells you when everyone started believing me. How I was diagnosed and what caused my dysautonomia. It also tells you what I hope to still become if I can ever get my symptoms under control.

Edited May 2011: I am permanently retired from the Marine Corps and I am still living with POTS but I am now able to do more than I use to. I still faint, in fact I fainted again a couple of hours ago, and have all the other symptoms of POTS that I've had since the beginning of my symptoms but I have learned how to live with them a lot better.

Category:

People & Blogs

Tags:

• Dysautonomia
• Postural
• Orthostatic
• Tachycardia
• Syndrome
• Marine
• Corps
• Ammo
• Tech
• 2311
• Camp
• Lejeune
• Positive
• Attitude
• Awareness
• Syncope
• Fainting

[shortysax]

Wish I could hear the rest of your story :-( Silly youtube.  Any way you could reupload?

[sarahdionna]

@shortysax It worked okay for me... perhaps you could give it a retry. I don't have the same computer anymore that I had when I created this so I don't have the video clips to redo it. I might make another "story" one in the future.

[MsCheekyhead]

@shortysax @sarahdionna The same thing has happened to me too! I cannot hear this clip! Very diappointing, as this seems like the important part!!

I have been receiveing this message : NOTICE This video contains an audio track that has not been authorized by WMG. The audio has been disabled. More about copyright

[sarahdionna]

@MsCheekyhead Okay. I guess it is time to update it anyway. Lol. I will make up a new one within a week. Thanks for letting me know.

[LiLIrishChick63]

i was diagnosed with this a few years ago. listening to u talk about how no1 believed u, i know how u feel! even the cardiologist who diagnosed me was sort of nonchalant about it. i was only diagnosed with a slight case of POTS tho, luckily i haven't fully passed out yet(i've gotten pretty close). i'm sorry u had to give up what u loved to do, but i hope u get to find something else u love to do instead!

[sarahdionna]

@LiLIrishChick63 Thank you so much! I still find things that I enjoy doing and one day I hope to be a mother which will be way better than anything else! I hope that you are able to find a lot of relief in your symptoms!

[icesktr189]

Lexapro worked WONDERS for my POTS. The beginning month was horrible with symptoms, but I went from being bed bound for a year to working full time and now a mother!

[dkbrinlee]

Hello sarah,

my wife has had Pots and dysautonomia for 5 years after a bad pnuemonia. She has had to quit working and is mostly bed ridden most the time. She has been to the mayo clinic twice and has had all the drugs like you. No luck so far. I know how hard it is for you and believe me it is very difficult to deal with. Keep up believing and hoping. Keep up the fight.

Daniel

[rapreborn]

I couldn't imagine life without xanax and atenolol.

[lynnea8193]

I have had POTS for about 3 months now. It took the doctors about a month and a half to figure out what I had and get me on medication. I don't faint but I get extremely overheated and nauseous after standing for just 10 min. I was considering a wheelchair because I seem fine sitting for long periods of time. I am going to be a senior in high school in about a month and I am so scared! I don't know how I will be able to go to school!!! Salt tablets and florinef have helped me the most so far :D

[TheYazmanian]

my heart goes out to you. keep the faith and keep it strong girl!

[lowkuashus]

Thank you so much for sharing your story! I just went to a neurologist yesterday because I passed out in June and we don't know what it was. I was born premie and had seizures until I was 10 so we thought it was that - but yesterday when I was getting my blood drawn I passed out again and they sent me to the ER. The ER doctor thinks it was fainting and not seizures. Still have to get a lot of tests done, we don't know what it is. But if you can make it with POTS I can make it with what I have!

[LiLIrishChick63]

@sarahdionna thank you! i find that drinking a lot of water and keeping my fluids up DOES help a lot! i'm hoping to someday become a mother as well! good luck to you! :)