Dystonia: Are You at Risk?

Today there are over 40 million people in North America suffering from a movement disorder. One of them is the 3rd most common: DYSTONIA. Dystonia is a neurological disorder causing abnormal, involuntary postures, movements, and tremors; it remains cureless as well as disabling for many of its victims.

Related Links:

Beka's Personal Journey
http://care4dystonia.org/index.php/moving-series/

About DBS Surgery
http://www.parasphotography.com/beka.html

About Botulinum Toxin
http://www.myobloc.com

More Toxin Information
http://care4dystonia.org/index.php/nt201-toxin/

Meds to Avoid
http://care4dystonia.org/index.php/our-publications/

You can make a change by donating to Care4Dystonia! http://care4dystonia.org/index.php/donate/

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Category:

Nonprofits & Activism

Tags:

• dystonia
• movement
• neurological
• deep brain stimulation
• botox
• myobloc
• spasms
• torticollis
• dystonia movement
• disorder
• Dystonia Awareness
• awareness
• dystonic
• dystonian
• movement disorder
• risk
• assessment

[care4dystonia]

We are getting quite a few good valuable comments about this video. pass the link along. No one is immune to dystonia.

[care4dystonia]

Wow, Beka - You have outdone everyone with this great video.

K.M

[care4dystonia]

Thanks, Kath- I'm new to YouTube so I cant answer about your email privacy question.

Sorri.

beka

[care4dystonia]

Thanks kath-

Still find this system complex...!

beka

[tylershope]

Beka,

Great Video. I appreciate your efforts for awareness against this horrible disorder.

Rick Staab, Tyler's Hope for a Dystonia Cure

[care4dystonia]

Thanks Rick....Feel free to use the Video link to educate others about dystonia..

beka

[amyfricano]

me too, throat muscles involivng vocal changes, oralmandibular, eyes, cervical. enough, yet nowhere near as bad as many folks.

thanks for sharing this.

[4727JOYCE]

appreciate the explanation

[kaazoom]

I have a movement disorder. I have often wondered about dystonia. My movements are mostly upper body. Some very quick and violent; Some involve my head twisting quickly and being held in position for a few seconds; some are slow, but again only sustained for seconds. I have problems with my legs too. The muscles seem to go into spasm when I walk, although when I have my legs examined at rest I am told the tone is normal! None of my movements are sustained for any more than a few seconds.

[12thJupiter]

I was diagnosed with Dystonia a few months ago. As others who posted, I also have Lyme Disease. This is the cause of it for me.

[lonestardehy6]

can you please send me some liturature thank you

[brstvena]

Your description of dystonia is pretty good but it isn't as common as some people are being led to believe. Muscle spasms are very common. Atheletes suffer muscle spasms that are very similar to what dystonia patients experience but they don't have dystonia. We need to be careful not to use dystonia as a general term and confuse the public. Muscle spasms can be treated. I have a very severe case of dystonia since 6 years old, 55 years and am the author of a book and website.

[LedByTheLamb]

I have this also and was diagnosed with Lyme Disease a few months ago. IT has gotten better with Antibiotic treatment but when I went off abx for 10 days it came right back.

Have you been tested for Lyme Disease with a Western Blot test?

[krubino]

Ps. Sorry...to see the other Lyme videos, after clicking on my screen name, you must click on the number "18" after the word "Favorites"!

[krubino]

(cont'd from below) being told to patients as their "diagnosis" (this happens when the doctor CAN'T FIND A TRUE DIAGNOSIS)!!! PLEASE click on my screen name in order to watch some informative Lyme videos, then pass it on!!!

[krubino]

TWO WORDS...LYME DISEASE!!! When Lyme isn't properly DIAGNOSED &/or isn't treasted ON TIME, it can & USUALLY DOES become CHRONIC, & can affect from one to ALL bodily systems, including the NEUROLOGICAL system...and, BECAUSE CHRONIC illness brings in BILLIONS of $ everyday, CHRONIC Lyme has yet to even be acknowledged by the CDC, IDSA, etc. (THE GEOVERNMENT), thus, doctors NOR labs NOR the public are PROPERLY EDUCATED re Lyme! BTW, dystonia, fibromyalgia, IBS, etc. are merely SYMPTOMS, (cont'd)