juvenile battens disease

My Beautiful Son Mitchell who lost his Life to Juvenile Battens disease at the age of 17

Category:

Education

Tags:

• juvenile
• battens
• disease

[Uglyducksgethot]

battens disease is always such a sad situation. i wonder if he had often seizures?

[briggsjudy]

he did have seizures over the course of his disease but at the end of his life we did not see seizures. I have another son with Juvenile battens at home he still alot of issues with seizures. Are you a Battens parent or sibling?

[MicrosoftX2000]

Was there vision loss involved?

[briggsjudy]

yes he was totally blind Mitchell loss his vision at the age of 7 thats what led us to the testing and diagnosis of juvenile battens disease.

[boo23081986]

this is so touching story, its very difficult to say anything, i hope you will get through this terrible times, and even if your beautifull kids will become an angels, remember they will look at you from above. am sending you my best regards and lots of love. stay strong!!

[dothedrew93]

The more I research Batten Disease, the more heartbroken I am. There needs to be more awareness and research for diseases like this; It's a tragedy. My prayers are with you and your family. God bless.

[carlospiceyweiner100]

im sorry dude stay strong :(

[joysmith2121]

im really happy that i came across one video where no one had something bad to say about a kid im so sick of going on a video with kids that have rare diseases and every one maki rude comments these kids didnt have a choice to have these types of problems

[jenjen21ification]

I've never heard of this until I watched some videos about it. I'm so sorry for your loss. It makes me sad seeing this.

[jaxterbom]

I'm very sorry. He was indeed a handsome young man with a bright future if not for this terrible disease. Research!

[kdranch2007]

Hi, my name is Desiree, Thanks for sharing this. I also lost my brother to Battens disease when he turned 21. I have since lost both my parents from other things but being alone makes u appreciate life so much more. Thanks again for sharing

[Synchronicity33]

I'm very sorry for your loss. I know a bit about this disease. My 2 brothers Donny and Donny suffered from this disease. My mother had 6 children and the pattern that we were affected was every other until, I was born. The Doctors suggested that I be aborted because their was a good chance I would be inflicted. My mother decided to being me into the world and I couldn't be more thankful! Although I do carry the gene (carrier). God Bless you and please don't lose hope for your living child.

[shanmarchay]

I am so sorry for your loss judy. My sister in law has juvenile battens also. She will be 20 this year, and as to be expected, is not well. her decline since i met her at 14 is staggering and heartbreaking. my husband and i are in the process of genetic screening. my heart goes out to you...

[jaykungfu]

This is truly tragic and this is why i am pro stem cell study and use, due to the ability to cure such senseless illnesses. a company called STEM is working on a cure for this