Severe M.E Carer Diary, Day 1
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1:53
Severe M.E Carer Diary, Day 2by PreoccupiedPorcupine1,341 views- 7:08
Caring for someone with severe ME/CFSby gregcrowhurst11,407 views
- 7:12
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- 3:00
C.F.S/M.E - The Torturous Diseaseby pkblaze131223,930 views
- 7:49
What happened to Sophia Mirza who died from ME/CFSby MaverickMiracle12,140 views
- 6:11
Natalie for CFS/ME Awarenessby obscenely4,891 views
- 6:35
Item on M.E. and DLA/IB - Politics Showby GBCOne2,368 views
- 5:01
M.E. on UK televisionby ozmevid4,082 views
- 4:00
What would you do?by SolveCFS12,785 views
- 2:09
Wessely wants "Chronic Fatigue Syndrome" - ITNby GBCOne20,417 views
- 5:39
Bad beyond Beliefby gregcrowhurst1,751 views
- 3:34
Lupus Sun 011.MP4by MyDisabilityInfo833 views
- 2:24
USA NIH RESEARCH SITE: www.clinicaltrials.govby DysautonomiaMD45 views
- 0:31
Real Question: Video Games and Seizures?by EmoryHealthSource10 views
- 5:12
Severe ME Carers Diary Day Twoby gregcrowhurst500 views
- 9:07
I Remember Me - Chronic Fatigue Syndrome CFS 3 of 9by ncf12,504 views
- 7:14
Interview about Myalgic Encephalomyelits / chronic fatigue syndrom a severe diseaseby Nightingale428Flore303 views
- 8:19
CFS Patients Address the CDCby all2trueable6,527 views
- 4:23
CHRONIC FATIGUE ME XMRV VIRUSby drjohnbakerdc1,532 views
- 7:42
Haley is My Hero~A Dravet Story 11 2 09by haleyandtwins2,752 views
Hi Tara.....I hope you are seeing some improvement sweetheart. I've had M.E for 20 yrs, was very severe at the beginning but I am a lot better than I was. Firstly I wish you a huge improvement in your health ( and don't ever give up as you can get better!!) and secondly I hope you find a GP who takes your illness seriously. I consider myself one of the lucky ones as my GP diagnosed my illness. A lot of friends and family weren't and aren't so understanding so I know how hard it must be.Get well!
nicemmali 4 months ago
Thanks for doing these videos. They are very powerful.
btw- volume on this one is inaudible, at least for me.
justinreilly1 1 year ago
A tech once was told to give me an ekg. She was outraged by the thrush on my scalp (diagnosed by an infectious disease doctor) said she couldn't get a good contact. She stimulated my scalp for ten minutes and unhooked the wires. The seizure came about 20 minutes after she left. Mine were this severe in the first few weeks, then became peri-menstrual. A woman doctor gave me a big bottle of dilantin, 1 tsp a day. 1 year and the seizures were much reduced.
These should be watched by MD's.
Ghostbead 1 year ago
Sending you love and hugs from me! <3
livingfaith17 2 years ago
Thank you for making this series of videos. I have been ill for nearly 4 years. I am fortunate - I am not bed bound, nor do I have to stay in a darken room. But my world is gradually shrinking as I am finding it increasingly difficult do things. If only it was just fatigue. But fatigue is just a small part of it. Few mention the gait problems, myoclonus, involuntary movements, feeling poisoned after a short amount of activity etc. Best Wishes to both of you.
kaazoom 2 years ago
You are both so strong x I've had M.E. for 8 years now. I'm 'lucky' to have stabilised at around 50%. All the best wishes in the world for you both x
justdefygravity2 2 years ago
Thinking of you and your daughter. i have M.E too and know how devastating it can be. Best Wishes to you both. xxx
fightforcure 2 years ago
Hi Tara, its Viks from AYME. Sending you lots and lots of love and hugs.
vikkkilouise 2 years ago