Fight Spinal Muscular Atrophy
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My best friend in the whole world has sma.
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@Estellastar1 brought me here. Wish there was something i can do. Its just so deeply saddening. I hope the funding becomes available and soon. I wish you all the best at fighting SMA. xx
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you are very brave parents.
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all the money that goes to celebrities and athletes can save lives. It saddens me to see the power of greed in our society. My sister has CP and has been wheelchair bound her entire life and I have lived with her and am currently pursuing a nursing degree so i may do my part and provide care for others.
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@VampressOfDarkness I'm not bed-ridden yet, but I am on two different high powered pain medications just so I can survive throughout the day. I'm still able to stay in my chair during the day, but if I can't find something to help with the hip and leg pain I may end up bed-ridden in the next 5-10 years.
All my major pain started about 4 years ago, when I was 22. Just been a downhill fight since then.
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@mcgreggor I have SMA Type 2 and I know exactly what you mean; I've been pretty much completely bed-ridden for 6 years now because it is just too agonizing to be up in my chair..I only get up and sit in it about 2-3 times a year when it's unavoidable. I'm on a lot of pain medications, and even so I can't remember a single day I wasn't in some kind of pain or had something wrong with me, not since at least 15 years ago. Are you the same way?
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My son had SMA Type 1. He passed at 4 months old on December 29th 2010. He was a very happy and beautiful lil boy.
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My son passed away from SMA Type 1 on December 29th 2010 at 4 months old. But he was a very happy and beautiful lil boy
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The children with SMA and the Families of children with SMA are all bravehearts
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I wonder what the first person who was cured from tetanos thought?
I wonder what the name of the first person who had a blood translant wasand what that person thought afterwards?
I wonder what the first person treated with penicillin thought from being cured?
I would love to think that one day on this list of "I wonder" something along " that person was the first one being cured from SMA and that would be simply WONDERFUL to live the day
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My nephew Gavin lost his fight on March 27 2008. My birthday. We took him to Disney World and made every moment of his life fantstic. He had the greatest mom, (my sister) that any child could have. We all have our faults and so does she. But in the end no baby could have felt more love in the 184 days he had.
trailfollower 3 years ago 6
he is absolutely gorgous.. xx
jaymie9000 3 years ago 4