Pete singing "The Dance" Living with Huntington's Disease

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Uploaded by on May 12, 2010

I finally caught Pete in the mood to sing at home and let me record a video. He was diagnosed with HD in November 2004 after going through a lengthy neuro-psychological exam. The disease is progressing very slowly for him. So far he has trouble with cognition specifically with multi-tasking, attention and concentration, short-term memory, sense of time and the ability to begin and end tasks, he gets stuck on an idea or task, has a lack of impulse control and irritability.

Knowing that Huntington's is the cause of all of this makes it much easier for those around him to understand why and how to deal with the problems. Although it is frustrating for Pete to live with all these symptoms and hard knowing the disease will take over his entire body, he is thankful that he knows exactly what he's dealing with and he's planning his future accordingly and praying for a cure at the same time.




Because this disease is genetic, Pete has already seen his grandmother, mother and sister succumb to Huntington's.


Watch the "favorites videos" we have on our channel made by others affected by HD and go to HDSA.org to learn more about this devestating genetic, neurological disease.

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Uploader Comments (Eclaire51)

  • The song is so fitting. My family suffers from this horrible disease also.my prayers are with you.

  • @MsJmarie32 Thank you. We must continue to pray for a cure for all families suffering from HD!

  • I couldnt agree more with the lyrics of this song.I cant tell u how much this speaks to me. Pete has such a lovely voice and u can tell he feels every word..Thank u so much for posting this (as much as it made me cry ) please keep strong and never lose hope.Its thanks to people like u that make people like me feel less alone and keep hope alive and for that I thank u.

    Holly

  • @holholhd23 I am glad you found comfort in Pete's video. This is why we put it on here. Thank you and keep strong too

    Holly! PS: it's ok to cry.

  • Would you please look at the video made by my friend, Jim Rice on YouTube? I think these two fellows might find a lot in common...Pete's voice is beautiful...

  • @MySweetgirlSophie I have actually been following Jim's video diary! His channel is eduk8rdoc right? I think what he is doing is great and very helpful in teaching others what it's like to have HD.

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All Comments (23)

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  • i ve listened to Pete singing i dont know how many times today, every time the tears are tripping me, knowing what he s going through and whats to come , such a talent x

    i echo one of the previous posts im in scotland and i know a lot of people who would just love to hear him singing a recording would be excellant

  • i ve listened to Pete singing i dont know how many times today, every time the tears are tripping me, knowing what he s going through and whats to come , such a talent x

  • Great voice ..... I really enjoy listen to him.

    You should convince him to let you tape more.... really

    Thanks for sharing this

  • Thank you for getting back with me. I am glad that you are keeping up with him through his videos. I love Pete's voice. He is so talented...How is he doing? Thank you, again.

  • Thank you for getting back with me. I am glad that you are keeping up with through his videos. I love Pete's voice. He is so talented...How is he doing? Thank you, again.

    Gayle

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