Dystonia storm today

This is what I endured today. (08/09/11) I know I don't have "A-Typical" symptoms, but don't tell me that I don't have it! Awareness is what we need and awareness is what I hope this brings. I made this for my neurologist , so he can see what has been happening lately during my storms. This is part one.

Category:

Education

Tags:

• Dystonia

[adamp51]

@JerrodBalzer THat's funny because Benadryl causes dystonia in my right leg (focal) so I simply stay away from it and fortunately the leg responds extremely well to walks on my Norditrack. If I skip that, within a few days I will notice. I do this 3/week for 2 mi ea..

[wiccanmoonman]

FAKE

[mrscarol5555]

My heart go's out to you , and I hope and pray you will not have to live with this for long and the Doc's will fine what will help you all .. God Bless

[JerrodBalzer]

Thank you! I suffer from this daily, and found Benadryl to be the only thing to help stop a serious attack, which baffles my neurologist. Perhaps if let him know of others taking it, it will help. I'm diagnosed with Conversion Disorder, btw, where my brain is converting stress, emotional changes, fatigue, etc into seizure activity in the form of cataplexy and dystonia. Doesn't show up on brain tests because it's "non-epileptic" but it's very real (from an old head injury). Hope that helps!

[canadianlover2007]

@Niceboy3377 ...yes I will always have it! but I am dealing with it! :)

[Niceboy3377]

@canadianlover2007 :(( do u still have it?

[canadianlover2007]

@Niceboy3377 ... Extremely painful ! :( like the worst charley horse you ever had.

[Niceboy3377]

@canadianlover2007 painful?

[canadianlover2007]

@Niceboy3377 a charlyhorse from hell. lol I want to just relax, but can't...I used to panic, but now have taught myself that it will be over...eventually! :-/

[canadianlover2007]

@InacityMedia nope! and don't plan to, but thanks for the info.