Lauren
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Uploaded by edgar1979erica on May 24, 2008
ichthyosis skin disorders dry skin scaly lamellar
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I have lamellar ichthyosis also :) finally know that im not alone :)
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beautiful, beautiful, beautiful baby girl :)
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@dkamath well i am not sure for this one but for harlequin Ichthyosis their is no cure at all
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My baby brother has this, he's fucking awesome.
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Heii can you tell what is it? Cuz i don realy understand what it is.
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Thank you for posting this. My late daughter survived 3 mos. with severe LI. My 4 yo. son has LI as well. Way to keep a smile on your face in the NICU!
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i havent been able to spell very untill i was in the 7th grade you are doing fine and good luck with your new butiful baby.
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Hi, my son was also collodion baby and he is sooo lovely even today, 8 years old , playing football, piano, wants to beging breakbdance. Much work with the skin, but everything is allright now and we live a normal life with lamellar ichthyosis. Thaks for your video and good luck to all the family :)
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Hi, I am a 27 girl from Italy and I have Lamellar Ichthyosis eritrodermal too. I am taking retinoids since I was 18 and of course a lot of Vaseline to moisturize my skin. I do need to have long baths but now I am so fine that you can't say I have Ichthyosis :)
good luck with your beautiful girl, she will be fine and happy
Ciao
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Beautiful! My son Evan, now 6 months old, was also born a Collodian baby and believed to have Lamellar Ichthyosis. Your video has been an inspiration for me and I'm sure many others who are going through the same thing. She is gorgeous - thank you very much for sharing your experience.
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I just want you to know that I admire you. My Mom and Dad went through the same thing with me and I am now 33 years old married with 3 beautiful children and they do not have the disorder. Stand by your baby and be Blessed. My name is Tiffany Monroe Booth and I live in Va.
swetygyrl 2 years ago 4
God's mercy has shone all over your familiy, i'm deeply touched and crying...i'm very very happy for you.
Bless you and have a wonderful life with your child.
CharlesBarret 3 years ago 4