Spinal Muscular Atrophy Kids (Fight SMA)

From Fight SMA ( http://www.fightsma.org ) - This video was shown at the 2007 Fight SMA National Spinal Muscular Atrophy Conference. It features images of the kids of Fight SMA ... the reason we're fighting this horrid disease. SMA is the leading genetic killer of children under two.

Category:

People & Blogs

Tags:

• health
• medical
• spinal
• muscular
• atrophy
• sma
• family
• kids
• pictures

[stevemullen]

I apologize for not responding. I thought I had, but apparently something happened where it wasn't posted. SMA is short for spinal muscular atrophy. Flyfreezzie is correct in the description below. SMA is the leading genetic killer of children under two.

[1992peter]

My name is Peter John Foster and I'm only 15, but I'm DETERMINED to find a cure for SMA.

I may be severly visually impared and have several health disorders, but THAT WILL NOT STOP ME FROM FINDING A CURE FOR SMA.

I will do WHATEVER I HAVE TO to finda CURE FOR SMA.

I don't care the least if it means giving up my WHOLE ENTIRE LIFE.

I AM COMPLETELY DETERMINED TO FIND A CURE FOR SMA, along with other Genetic disorders such as CF, Tay-Sachs disease, and Huntington's disease.

I WILL

[kat6878]

such a devasting condition with such a massive feeling of uncertainty and helplesness for the parents and carers.

i have lost 2 sons wwith type 1 Jake in nov 2006 age 7 1/2 months and Toby 2 weeks ago aged 11 1/2 months, it would have been his 1st birthday tomorrow, the goal in which i prayed he reach.

a beautiful tribute to the sufferers of SMA

[mylovesofmylife]

These children are gorgeous and truly precious

[tex11111]

make all the videos in the world it wont help you i have sma type 3 the big boyz have the cure put wont give it yet thay need to make 3 or 4 billion its the same thin with aids thay have the cure for that when thay make the money you will get it i tell the truth

[Oceansoul077]

I'm so glad of finding so many people who care. If you want to help and have Facebook account you can search for SMA, there are many organizations, foundations and support groups handled by parents who have lost children to SMA or that are fighting to extend the life of their little ones. There are many opportunities to raise funds thru voting in contests like Pepsi which would mean $250k (a year of research), petitions, etc. SMA is the illness closest to be cured in 5 years, but help is needed

[Oceansoul077]

I am so sorry for your loss. Every parent's loss is a Heaven's gain, I'm sure you will get to hold them again. You are invited to join the fight in Facebook, there are so many organizations and foundations raising money and awareness, there is the hope for a cure in less than 5 years if support and proper funding is added, right now SMA is competing for $250k from Pepsi contest you can check it on Facebook and vote daily and there are several petitions online for government support

[Oceansoul077]

SMA is the #1 killer of children under age 2.One in 6000 babies is born with SMA.This happens as a result of both parents carrying the gene that causes it, every pregnancy means 25% chance of having a SMA baby.1 in 40 people carry this gene without knowing, (there is testing available)There is no cure and no treatment, but there is hope, since scientists say SMA is the #1 disease to be cured in less than 5 years if counting with support and proper funding

[CousinSusie]

I'm so sorry to hear of your loss!  I could not even imagine! I have twin sons with SMA type 3, they have been in power chair since they were six and are almost 20 in there second year of college!

[CousinSusie]

Yes there is FYINT!

[CousinSusie]

God Bless you Peter, I have twin sons who will be 20 with SMA! We pray for a cure everyday Buddy!

[desarrolloamazonico]

is there any study about that? How babys get this SMA? hope sientists can find a cure for it

[sweetpeacegarden]

little darlings