Jordan's Telethon Story
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@teamreaux221 My son is 2, he was diagnosed July 2011. He got rather big for a couple months. But as of now its REALLY small,we can't even tell he has it right now. VERY thankful. Please let me know how your treatments go. I do videos on my channel about my sons eye. How is your daughter?
SharingOurLife 3 weeks ago
@SharingOurLife I'm so excited to see this video too! My niece was just diagnosed with the same exact thing. My sister has been bringing her to eye doctors for years. When she first started bringing my niece, the doctors told my sister she was overreacting. Now, that you can obviously see the tumor in the corner of her eye, they finally diagnosed her, but said there is nothing they can do. We have felt so hopeless till today. My sister already has an appointment scheduled. Thank you God!
jlb2171 3 weeks ago
My daughter has a lymphangioma behind her eye as well and I'm very curious to know how Jordan is doing today? Has he had any other issues with his eye since the procedure has been done?
teamreaux221 3 weeks ago
@SharingOurLife My daughter also has a lymphangioma behind her eye. We detected it when she was 5 and now she is 7. We have seen several different specialist and last week we got back from Houston and were told for the 9th time that nothing can be done and this is something she will live with forever. I came across this video yesterday and I called Dr Shiels office. They think they may be able to help her, but I don't want to get too excited yet...What is the status of your son's eye?
teamreaux221 3 weeks ago
Gods With You(:
babygirl5282 1 month ago
Overwhelmed with tears while watching. My son was diagnosed with lymphangioma behind his eye July 2011. He is 2 years old, we go to UVA to get MRI's and just check ups, cause there is no treatment. I am beyond excited to think that there is a cure for him!!!!!
SharingOurLife 1 month ago