Floor Speech on Hydrocephalus
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2:18
Floor Speech on Father's Dayby SullivanOK01175 views- 7:48
Energy and Commerce Hearingby SullivanOK01162 views
- 2:17
Sullivan Opening Statement on Obama Regulatory Reform Initiativeby SullivanOK0136 views
- 0:38
Merry Christmas and God Bless Our Troopsby SullivanOK01108 views
- 1:01
About Hydrocephalusby wutime7,576 views
- 8:44
Speaking at Hydrocephalus Awareness Rally Dayby Diffie641,614 views
- 2:51
HYDROCEPHALUS - Ventriculostomy insertionby 0rcuslord2,048 views
- 0:32
Normal pressure hydrocephalusby thienthienlim10,011 views
- 3:14
Imagine No Hydrocephalusby HydroAssoc7,807 views
- 2:07
Minimally Invasive Treatment of Hydrocephalusby ORLivedotcom32,982 views
- 1:39
Sullivan Tea Party Petition April 30 2009by SullivanOK01693 views
- 3:29
Will You WALK For Hydrocephalus?by DetroitHydroWalk1,182 views
- 1:03
Insertion of a CSF shuntby campbellmarsh82,239 views
- 6:15
Could your Child have Hydrocephaly?by isrvideos591 views
- 7:33
Having Hydrocephalusby dadorothy1,819 views
- 5:40
Comcast Newsmakers Showby GOPUSANJ903 views
- 5:26
Hydrocephalus Rantby tobybelchy7,613 views
- 4:21
Dandy-Walker Resolutionby RepChrisVanHollen1,591 views
- 3:09
Normal Pressure Hydrocephalus (NPH)by CarolinaNeurosurgery1,923 views
Someone ought to tell them how to pronounce it! It's Hy-dro-ceph-a-LUS.
MrsMelanieC 10 months ago
I'm 45;sorry to hear you'er going through the same experience I did in school. Kids can be jerks;so can employers.
HUSKY57887 2 years ago
I've had hydrocephalus all my life and have had over 50 brain surgeries... yes it does get pretty hard some times but I've still been able to live a normal life.
Em1594 2 years ago
Hi Kathleen. There is no "determined" cause for Hydrocephalus. My parents told me they noticed that at 2 1/2 to 3 months of age, I could not hold my head up and could not focus my eyes and that is when they knew something was wrong. My mother did not take drugs or even drink or smoke. I don't believe innoculations have anything to do with it. I think it is something developmental in the womb which may have a delay in surfacing in infancy. Otherwise, it is said to be caused by trauma
cklmtn 2 years ago
Would really like to communicate.
Say hello to Kathleen believeanyway@yahoo sometime.
Hoping to hear from you.
believeanyway 2 years ago
I am 41 years old and have lived with Hydrocephalus all of my life. I have been fortunate to have had the same shunt for 30 years and have only in the last 8 years had additional surgery. People do need to understand the seriousness of this condition. It can cause strokes and seizures - both of which I have had. There MUST be more funding for research for a cure- not just the treatment.
cklmtn 2 years ago
My grand daughter had cist that was blocking the fluid. Obviously it is blockage, right ? Folks need to speak out more. More than Breast Cancer. Why are'nt we doing AS MUCH for hydrocephalus as we do for breast cancer. Been very angry abt that for a long time !! Thank GOD I can finally sound off here. TKS
Anyone that wants to join me in conversing abt this, would be greatful
please dm me at Twitter ANYTIME @ believeanyway. Don't be afraid any longer to speak up.
believeanyway 2 years ago
Have one with hydrocephalus and another with SMA 1.not biological.
Used to affect 1 in 10,000 they said. Here stated 1 in 500. Now 1 in 250.
Just exactly WHEN ARE WE GOING TO DO SOMETHING ABOUT THESE CHILDREN ??
Stop taking assistance away from these children and educate Doctors, Parents,and Specialists.
Most of all I am wondering what the cause is.. Is it from plastic, environment, shots??? PLEASE Research.
I AM VERY INTERESTED IN THESE TWO DISEASE'S.
believeanyway 2 years ago
im 14 and i have it.... they better fucking find a cure i hate being teased
Sabrinabeezle 3 years ago
can someone explain to me why we who have hydro do not have the ability to get medical care that can save our lives? at 60 grand every single time we go under you would think they would consider all the money they are wasting on not finding a cure. something tells me stem cells are the answer but the myth proceeds the fact.
chickaboom73 3 years ago