ME/CFS demo: Health and Human Services WDC May 10, '11

On May 10, 2011, 6 individuals with ME/CFS, each sick and disabled from 9 to 21 years, demonstrated in front of the U.S. Department of Health and Human Services (HHS), 200 Independence Ave, S.W., Capitol Hill, Washington D.C. They carried with them just one sign, a 25 foot banner that read: "Obama, Sebelius, HHS: Shame on you for abandoning 1 million sick and disabled Americans with ME/CFS and XMRV (Chronic Fatigue Syndrome and a newly discovered retrovirus). Clinical trials now!"

Category:

News & Politics

Tags:

• CFS
• ME/CFS
• Chronic
• Fatigue
• Syndrome
• protest
• demonstration
• Health
• and
• Human
• Services
• HHS
• Sebelius
• Obama

[HogaresLimpiosSQM]

i'm gonna try to add subtitles into spanish i hope that's ok, i believe our mates here need to see it, love, ho. (if that's ok but it takes ages pardon my brains)

[CFSDemo]

@HogaresLimpiosSQM yes, spanish subtitles would be great. maybe my pal "s" from spain can do it, too?

[CFSDemo]

thank you to everyone who is posting and emailing on and off this youtube site. i sure hope others who are able will do their own mini-demo. and for those who are not able, we completely support you and are doing the best we can to fight for the rights of all of us.

please, everyone, send a link to this video to HHS Secretary Sebelius, NIH Director Collins and NAID's Director Fauci.

kathleen.sebelius@hhs.gov, Francis.collins@nih.gov, collinsf@od.nih.gov, afauci@niad.nih.gov

[ElisabethBry]

So so proud of you all - you have done a great job representing us. Thank you so so much Rivka et all. BTW, Rivka - let me know if you need banners and posters - I want to support being heard!!!! Elisabeth

[CFSDemo]

@ElisabethBry -- yes, elisabeth, we need yr help. contact me at rivka (at) thattakesovaries (dot) org

[CFSDemo]

@flashcard1011 -- i am so sorry to here how limited your life has become as a result of this illness. i know many many others in similar situations. we need help from our gov't and the medical community and the compassion of the general public. we deserve it.

[misstree75]

Thank you. I'm from Massachusetts. Been sick for 15 years and unbelieved that I am. It is in my blood.

[mienmiennn]

WELL DONE, many thanks from spain!

[mienmiennn]

WELL DONE, many thanks from spain!

[jocelmeow]

So grateful for y'all doing this on all of our behalf. I'm bedridden, so this particular sort of action is beyond me, but I applaud you for using some of your scant energy to make this happen.