A little on the moya moya disease
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alguna persona me podría ayudarme con la traducción de este vídeo, o que por lo menos me explique que aspectos puntuales toca.... se lo agradecería muchísimo!! estoy trabajando con los dos únicos casos de moya moya en Colombia.
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please join the page Moyamoya disease page at facebook...hope can hav more discussion and sharing of experience to help others...thks
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this is one brave kid. i comend the mom and dad for the love for theri son and risk whatever they have to save theri son.i hope your son is healing prperly and is growing strong. WAY TO GO MAT!!!!
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that is so awesome that his parents persisted and found a way for their son to get better. thats so awesome. these parents really love their son, i'm sure they know how other parents with children in this situation feel.
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well problem is in many countries surgery for moya moya cannot be cured but thankfully new york has the right treatment i bet that kid matthew is doing well. Im so proud of him having the surgery at that age he pretty brave.
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Hello darling stormvixen! xxx hugs xxx
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Hiya twish : ) fancy seeing you here x
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Very good, informative video, I had never heard of this before
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Isn't it wonderful what medical science can do xxx hugs xxx
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Dali, thank you so much for posting it! <<<BIG HUGS>> LOVE YA DALI!!!! Peace & Love, Aki. (I'm crying..seriously..THANK YOU..)
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i saw this vid on the site. i went there to understand AKI few weeks ago. it is really bad deseause, but aki's strong and she did the surgery so she is good! ;D WE ALL LOVE AKI!!!!! hugs mikko
mirokuit 4 years ago
Ah so you saw it too! Right on Mikko!
Daliwolf 4 years ago
I'm glad you made this video. I love Aki, she's one of the kindest and sweetest woman on you tube.
glenna667 4 years ago
I actually snatched this from the moya moya web site (hope they don't mind) so yall could get a feel for what Aki is going through.
Daliwolf 4 years ago
Wow. That is devastating disease. So pleased that there have been advances in cranial surgery that offer hope to these children.
qiranger 4 years ago
Aki has this disease, and she JUST had the surgery on her right side I believe. Hopefully everything will work out for her. She is a super cool and good person.
Daliwolf 4 years ago