Elise: A Child Living With Tay-Sachs Disease

Tay-Sachs Disease is a rare genetic disorder that causes waste to build up in the cells of the brain due to a lack of Hex-A enzyme attacking the neurological functions. There is no Cure. The average life span is between 2-4 years. This is our daughter who was diagnosed Novemeber of '05 (at 11mo.). She is our miracle and angel and currently going on her 3rd birthday. :)

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[xoxrach07xox]

she bet the odds and lived till she was 7 but unfortunatly died in jan 2010

[tkrochman]

she is still beating the odds and not 7 ...yet....she is almost 6:)

[tkrochman]

Word to anyone reading this and who watched Glee on 12-9-2009.......anyone can carry a Tay-Sachs mutation. 1/250 of the general population. YOU DO NOT HAVE TO BE JEWISH TO CARRY TAY-SACHS.

[Luvvvv]

May I use this video to show my Anatomy and Physiology class with your permission? I'd like to get people to gain a more realistic perspective of the disease through my presentation.

[tkrochman]

I don't mind you using this. Just remember this is at the beginning of Elise's diagnosis. The disease has progressed a lot sense then.

[moshikamboshi]

she's beautiful :)

[dableeps]

such a terrible disease

[MeliNdDaniCanDance]

I wannaa crryy /;

[reidrules45]

The seven people who dislike this video are heartless and cold.

[emoelmo1419]

I didn't know what I was going to really do in life until I saw this video and heard about this disease I want to find a cure so families never have to go through this again.

[HumanInTheWorld]

@mommab0405

if u have any idea about this post me @ sugumaris@yahoo.com. As my cousin in this condition we couldn't find dr place,...

[MeghanMartinRulz]

@RockAnRow no. elise died on january 28.

[JustinBieberSwag]

She's beautiful:)

I was so sorry when I heard about her death:(

God bless you:/

[lawlzlauren]

A beautiful baaaby :)