Maya had trisomy 5 syndrome. She lived beautiful 24 days.

our daughter was born with a very rare chromosome problem - partial trisomy chromosome 5. we found out when i was 30 weeks pregnant. we have enjoyed beautiful 24 days with her. when Maya was born she looked like every other healthy baby except for her talipes feet and a bit extra tissue on her right eye but she had also very low muscle tone - couldn't swallow, cry, cough, not much move really. We fed her with nasal-gastric tube. Towards the end of her life she started getting more and more episodes of getting blue skin color. She passed away shortly after a scheduled visit in Rotunda hospital. eleo399@gmail.com

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• partial
• trisomy
• chromosome
• 5p+
• syndrome
• trisomia
• genetic
• disorder
• zespol
• genetyczny
• trysomia
• Maya
• Maja
• Walczuk
• Swords
• Dublin
• Rotunda
• hospital
• 24
• days
• infant
• niemowle
• child
• zaburzenia
• disorders
• paediatric
• choroba
• disease
• talipes
• arachnodactylia
• nasal
• gastric
• tube
• Matwiejuk

[eleo399]

My little baby Maya - it would have been your second birthday yesterday... We miss you so much. God bless you -our little angel

[padussia]

She was so adorable.

[msJayjay2003]

Beautiful child may we pray on the soul

[abbbys]

Beautiful, I have no more words...

[bellamor33]

She is so absolutely beautiful.

I hope you find the comfort and strength you seek.

Her life will live on in her big brother's heart and mind forever.

[jawedfife]

What a beautiful little girl. That tiny smile is precious, priceless. How good God is to make and love these little ones, and to care for them in His arms. I will pray for you. I have two little girls in Heaven with Jesus, lost half way through pregnancy, and five others here and now. I know what it is like, for your little guy, who loves his sister so much. What a precious precious little girl, and she knew she was loved. In Jesus, MB will pray.

[mld70739]

What song is this?

[MsMaroon5luva]

God bless you all with happiness always :)

[toeztocy2003]

May God continue to comfort you .hugs