Fibromyalgia Pain Hell, Tell it like it is!

Fibro Hell People do not want to be sick! We want to live AND WORK and we want our lives back!

Category:

People & Blogs

Tags:

• fibro pain
• suicide pain
• lonely fibro
• lymph nodes
• chronic pain

[lipseek]

Hi Michelle.

I don't have Fibro myself, but one of my friends has been diagnosed with it.Your video's have helped me understand what she is going through so much better than what any doctor could. I will never truly *KNOW* what she is going through, but at least I have an idea of the frustration, the pain, the desperation of what she and you must be feeling. I wish I could do more.

If you could ask a friend to do anything that would make her life better or easier, what would you ask of her?

[mcertonio]

@lipseek  You read my mind. I want to do A video

ON HOW TO SPEAK TO YOUR DISABLED LOVED ONE.

Thank you for reminding me HOW IMPORTANT it is.

I do the video's and do not look back, I put my real emotion

In it. I have few bad remarks however I am not changing.

With me, You get what you see.

Thank You.

[daviscnc]

People don't understand the cognitive issues that come with the Fibro. Package. Esp. if you have chronic migraines or have to take pain meds on a bad day. I know how hard this is for you, but after weeding out some of the ignorant people here...I see that you helped educate someone. Keep it up...don't give up! I hit a 7 month remission once...it was heaven. I've been in pain since I was 7 yrs old. It runs in my family too. I tend to ramble as well and I'm always forgetting, mid-sentence.

[dawntenor]

Until I was so sick I've been in bed more months than I can remember....closing in on six I think? Working along with well people, smiling and pretending I wasn't sick started to feel like a typist with only one finger!?! People do not understand those of us trying to work that every movement, every hour is excruciating and 100 times harder for us to do as well as them.....which I did, only to hurt myself more. It doesn't help when companies hit you with."u arent allowed to take your meds" gr

[Dolothee]

Hi Michelle,just went through several of your videos...and hey!!! I sooo much agree to what you have to say!You are such a great person,with a lot of strength and ambition!It's 2.15am in Germany and I didn't want to go to bed before I worked myself through to be able to write to you!!!! No YT-account until now!

Not only do I have FMS but I LOVE your country and the people....would like to discuss so much more...but let me know how the Guai-therapy is working for you??Take care!! Go Michelle!

[lipseek]

@mcertonio I would REALLY, REALLY appreciate a video on that. For example, is it better for me to offer assistance with basic things like helping her put on a jacket, or brusing/washing her hair etc? Or is that being patronizing? I don't want to make her feel worse about the situation. And I don't want her to feel like a burden, because she's not. Any info about how I can help her with the pain? Like giving massages? Learning about accupunture? I hate seeing her go through this =[

Thnx so much

[sunny35b2]

Hey Michellle,I want to respond to the one issue you brought up of those who "think" all we want is pain pills,, or get a free ride from the state,,well now just think , IF I Truly wanted to (fake) an Illness it certainly wouldn't be Fibro/cfs.. to have to go thru all this hell from from not just family , friends, but Drs.. needing financial, and emotional support quickly, because we s told I had R/A ???? and because I also have liver issues I was given oxicodone, Didnt help. went to pain-mgmt

[lipseek]

@lipseek *YOUR, make your life better.

I mean. What can I do to help?

[SuperScreamingEagle]

@SuperScreamingEagle 2 trips to the ER....w/ kidney problems.

[SuperScreamingEagle]

I can no longer take pain killers cuz they almost destroyed my kidneys.