"Not In My Head" Chronic Fatigue Syndrome Radio PSA

Radio Public Service Announcement about Chronic Fatigue Syndrome; it coincided with the launch of the CFS Public Awareness Campaign by The CFIDS Association of America, as well as the CDC.

Category:

Nonprofits & Activism

Tags:

• CFS
• Chronic
• Fatigue
• Syndrome
• ME/CFS
• CFIDS
• Association
• of
• America
• Fibromyalgia

[justinreilly1]

"Why does everyone think it's all in my head?"

The part they left out was:

"Because we have been telling all the doctors it's all in your head for 25 years, until a couple of years ago. Now we just say that in private. A public service message from the CDC."

[bjsmit1]

The ironic thing, is that a lot of our symptoms might actually originate "all in our heads." Brain lesions, Hypothalamus-Pituitary dysfunction, dysautonomia, elevated cerebral lactate levels, decreased cerebral blood flow, a whole host of viruses generating damage in the CNS, etc...

And you're correct about a vast majority of physicians just not "getting it" for years, and not wanting to "get it" for many more years. Hopefully we've reached our tipping point in this fight...

[OzDelphi]

The advert says "... get diagnosed, get help"

Get help from whom? Doctors? Are you kidding me? Most of them think this disease is a joke!

[bjsmit1]

I'm just spreading the message -- I didn't produce the PSA.

I understand and agree with your frustration -- I travel almost 2000 miles to see a doctor. But I think more clinicians are becoming educated about CFS.

[bjsmit1]

Due to the support of many gracious donors who believe in the CFIDS Association, this milestone was attainable. As long as the federal government continues to fail the CFS patient population, The Association will continue to step up, and fill that role. This year's research campaign is the tip of the iceberg of what The Association is capable of, with support from us. As an individual living with CFS, I urge you to visit their website, and continue to support their efforts, as they support ours.

[bjsmit1]

The federal government has failed the CFS patient population too many times, for far too long. Because of the inadequate response to a major health crisis, The CFIDS Association of America has been tasked with the role of education, public policy, and most recently, a robust research program, lead by Dr. Suzanne Vernon, PhD. The Association launched a research campaign, with the goal of raising $1 million, strictly for research, in 2008. That milestone was met at the end of this past August.

[esiosan]

--> Go to NPR website and look up a report from 02/15/2011 called "Psychotherapy And Exercise Look Best To Treat Chronic Fatigue Syndrome" - It reports about the most recent study done on chronic fatigue, which found that graduate increase in physical exercise is an effective treatment. The results for this study was published at the Lancet Medical Journal.

[nz804]

I am 22 years old turning 23 this year am I just going to watch my birthday's go by to the point where my life is just wasting away which I have already lost 1 whole year due to this illness M.E. I used to cycle 80 kilometers everyday. If I go for a 15 minute walk it takes 2 weeks to recover, IT IS HORRIBLE!!!!

[nancypittman]

THis disease sucks! I always think why me? I wish i could just be normal again! It really makes me sad to think it's only gonna go down hill from here! :(

[oneeightywest]

Type the words - Why 'CFS' is wastebasket diagnosis' - into the Youtube search box and watch the video.

It's not that it's ' in your head' .

It's that the symptoms are open to misinterpretation.

Fran Dresher went to 7 different doctors before she was diagnosed with cancer.

If she had accepted CFS as an explanation for her health problems she would not be alive today.

[youaremydisillusion]

@justinreilly1 They never run these commercials

[youaremydisillusion]

@justinreilly1 They never run these commercials

[LSecret]

Thank you I'm posting this on my facebook profile.

Cuz pple around me keep telling me that I'm lazy and depressed.