Meet the Clines: Long QT Syndrome

Three-sport star Elizabeth Cline was swimming a few laps when her heart started racing and her legs went numb. It was all she could do to tap a fellow swimmer before she passed out. After testing at Akron Children's Hospital, it was determined she had long QT syndrome, a genetic condition that can cause the heart to suddenly stop beating. In this Children's Channel video podcast, Elizabeth and her family share the story of how this potentially-deadly condition has changed all of their lives.

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Nonprofits & Activism

Tags:

• akron
• children's
• hospital
• long
• qt
• syndrome
• heart
• center
• genetics
• metabolism
• icd
• implantable
• cardioverter
• defibrillator
• clines

[theshadowgypsy]

My daughter has all the symptoms of long qt syndrome, even my husbands cardioligist said so, but my daughter needs to see a pedeatric cardioligist, the pediatric cardioligist wont do the genitic testing because he says it costs to much and the insurance wont pay for it, what do I do???

[AkronChildrens]

@theshadowgypsy John Clark, one of our pediatric cardiologists, would like to touch base with you about this concern. You can contact him directly at jclark@chmca.org.

[cheeselovingirl14]

i have long qt syndrome too

:(

[fatharrypotter55]

hey i am doig lqts for a school project sorry for u though

[raichealokane]

i am 13 i have LQTS3 i found out 2 and half years ago i had to quit sports and swimming i had no black outs yet thankfully but i am on 6 capsules aday and 1 betablocker i hate taking them but iv no choice! i am pationitly waiting on word on my surgery to get a defibultor in but its just a life saver i can not do no sports all my life i am one of 5 in my family that has this.....

[somesortanaughty]

@cyphaqueen wow..quite an amazing short story.. i have qt3 too..but i'm 45 now and totally ignored for surgery.. i get by on the beta blockers, but the doses just get higher, i am tired all the time...and have really weird stuff happen to me in my sleep ( i am aware of it even in dreams and wake up to it) ..i'm on early retirement now. U must be a world record in cardiac arrests..so amazing u have survived.

[somesortanaughty]

Yeah..it is horrible when u try and tell people, well..i'm not supposed to get really upset, nor have adrenaline rushes, i can't have my arms above my head..i can't run..a.s.o..and people look at u like -well u look just fine...But i guess there is a lot automatic pain and -heart ache- with any life threatening disease.. still, sometimes it feels like it'd be easier to have an amputated leg, at least people could SEE that there is actually something wrong with u..

[cheeesemacoroni]

I have it, and as a teen it's really difficult, because it's untreatable. And you can die, I mean they're like, "blah blah blah, you could die" and you're like... huh?? It's emotional, but it DOES get easier as it goes... I promise :)

[peacepuppy224]

i play softball and volleyball and irishdance, so im really athletic. my mom has long Q.T and i have borderline Q.T and had to wear a halter monitor and soon a stress test

[RonT222]

So, life can go on through all of this. These hard times just build character.