Multiple Sclerosis and Fatigue

How does fatigue affect you? How do you treat it? Share your stories or ideas to help others.

Category:

People & Blogs

Tags:

• Multiple
• Sclerosis
• Fatigue
• Neuroplasticity
• axons
• cognitive
• problems
• lack
• of
• sleep

[missjenny011]

I am so glad I found this channel. My fatigue seems to be worse durning the evening after dinner. There are some days when I feel like I could sleep for 23 out of 24 hrs.

[MSVlogSupport]

@missjenny011 I am really glad you found us as well!! I still don't get the really bad fatigue that others talk about but have had it affect me still. Usually when I am having a relaspe or flare up of old symptoms is when it is the worst. Have you been able to find anything that helps it??

[williamr5101]

DX IN 04 I oxidate my muscles by breathing something I learned in boxing it really works...in through ur nose and out ur mouth. try it

[MSVlogSupport]

@williamr5101 Thanks for the tip, I am trying to do some easy yoga and it focused on breathing. So I guess I am on the right track!

[missjenny011]

@MSVlogSupport unfortunately I have not been able to find anything that help my fatigue. I try to pace myself throughout the day and take naps when I can. From some of the other videos that I have watched some people seem to think that moderate exercise will help. Despite having this disease I am just grateful to be alive to keep looking for a cure. Stay well and be safe.

[HisbellsEnd]

Andrea: It wasn't this relapse that had me diagnosed it was the first real one I experienced which happened in May and lasted till almost July.. and I'm on my way to look up your video lol.. I am just buckling under everything and feeling very scared.. as well as scared for my future and knowing that I won't be able to get any help through SSI or disability... I think the US needs a revamp of their help system lol.

[HisbellsEnd]

=) Thank you a bunch.. and I do have a great support system both on here as well in my personal life.. Just gets a bit hard at times.. It was four days and 3000 mil. They kept looking at me like I was supposed to be magically healed and back to feeling how I did before I was diagnosed.. Ugh.. sometimes I hate hospitals.. I actually did talk to the MS nurse that was assigned to my case about it and she said she would look something up for me due to not having insurances....

[MSVlogSupport]

@MSVlogSupport I went through that when I was working, so I understand what you are feeling. Was it this relapse that got you diagnosed? I did do a rambling 5 part series the the newly diagnosed. Some of it may help, but I do tend to ramble :-)

Nice to meet you!

Andrea

[MSVlogSupport]

@HisbellsEnd Hi, I am so glad you found us here! Sorry that MS is what brought us together, but you have a great group of friends here. You said a round of steroids, was a full course 4 or 5 days? For me they don't always work right away, it can take time to get the full benefits from them. There are several drugs that I know people take for fatigue, have you talked your Neurologist about it? Most people don't understand the kind of fatigue we get, they say well I get tired too!

[HisbellsEnd]

I have been just diagnosed with MS.. as of Aug 27th and just found your channel... =) .. I don't think mine has sunk in yet even though I've already had a relapse and had to sit in the hospital for a round of steroids (blah to those, they sucked!!!!) and it kinda helped.. But through it.. my fatigue is still as strong as ever. I have asked for something for the fatigue because with work I just can't do it but yet to receive the meds.. So another waiting game .. ugh lol