Hidradenitis Suppurativa aka HS Awareness

More info on HS:
http://en.wikipedia.org/wiki/Hidradenitis_suppurativa

Support/ Question via Kayla:
https://www.facebook.com/KPresjak

Shout out's and hugs to:
Kayla Riddle, Jay Limber, Jolie Dunnigan, Debbie Turnage, Samantha Rumley Wilson , Teri Korri, Nikki Carpenter, Louise Bowles, T.Paul Kuchta, Laci Tanner , Richard LaBrie, Dale Rickwood, Kerry Castine, Lynne Downs, and Kerry Castine.

Category:

People & Blogs

Tags:

• Hidradenitis Suppurativa
• hs
• awareness
• rare disease
• boils
• open wounds
• no cure
• surgery
• lyndah
• pizarro
• lou
• sonia
• matt
• froy
• operation repo
• repossession
• tru
• tv
• ega
• celeb
• linda

[alfreeheather21]

I think its awesome that you are raising awareness. means so much to me. Thank you! !!!!! oh and i love your lip gloss i know has nothing to do with video. but very pretty

[lyndahpizarro1]

@alfreeheather21 Your very welcome and thank you for the compliment.

[alfreeheather21]

Im only 20. and to not to beable to enjoy life feels like somebody robbed you.i have it on my thighs. underarms and breast. i cant even wear a bra anymore. i been dating a guys for 5yrs he was my first and I'm shocked he has not left me because of this. I cant really enjoy anything sexual anymore. and if so has to be pitch black in the room. and gotta be careful. i break down and cry afterwards. no matter what he says i still feel extremely unattractive. I cant even work because of this.

[lyndahpizarro1]

@alfreeheather21 So sorry you have to go through that. And he's still around because he truly loves you. Cherish that forever and allow that love to allow you to be more confident with him because confidence is the sexiest thing ever to anyone no matter what you think about yourself. Hope this video helps raise awareness and helps find a cure.

[alfreeheather21]

You were my favorite on operation Repo. Thanks so much for this video. Alot of people do not understand how painful this is. I have been a suffering of HS for 3years. I went to so many doctors. They misdiagnosed me several times. It ruins your day to day life. Ever since i was diagnosed, i have had severe depression. i cant wear jeans anymore. Have to wear really loose clothing or none at all. Cant enjoy the summer weather. cause you have to try to prevent from sweating. i weigh 160lbs.

[lyndahpizarro1]

@alfreeheather21 Your very welcome. It's the least I could do. Hope it helps and hope you get better.

[chandathemoongoddess]

Omg who wud dislike this video? Such idiots.. . simple fact is my doctor told me they aren't looking for a cure.. if we help push the issue ppl like me lives in pain most days can get a cure.. also untreated this disease will kill u. I don't wish this disease on even my worst enemy. Those who live with it are strong ppl. Much love to those struggling. I treat mine with pure silver (liquid form), and it helps. It's a natural antibiotic and won't make u sick like regular antibiotics.

[thescarletswan]

Great Video!! I have had HS from the age of 18 and I'm now 31 and really respect your stream of awareness!! This has at time's been a very painful and shameful disorder. Thank you for you kindness god bless!

[talent2k]

Thank you I wish more famous people would help like you create awareness. I am 39 and have had it since I am 16, 23 years. It sucks, but I have learned to live and cope! Again I thank you.

[misstip2006]

I HAVE HS SENSE 2006 I AM 24 AND I FEEL LIKE MY LIFE IS OVER. I HAVE THEM UNDER MY ARM PITS, MY GROIN AREA, BREAST, N STOMACH.......EVERYWHERER. I FEEL SOOO DEPRESSED ALOT N LIKR MY LIFE IS OVER. I HAVE BEEN FIGHTING THIS FOR SOOO LONG I JST WANT IT TO GO AWAY. I HAVE A 4YEAR OLD N I TRY NOT TO LET HER C ME CRY. ALL I WANT TO DO IS SEEP I JST HOPE N PRAY 1DAY THEY CAN FIND A CUE FOR THIS B4 ITS TO LATE 4 ME OR N E ONE ELSE

[yemaya71]

I have had HS for more than a decade unfortunately no money to treat it. Also it seems to be a abandoned disease. Most MD I have gone to who have NEVER done a rotation in dermatology have NO clue what it is. Kudos to you from bringing awareness to this condition.

[SERENAJANELOPEZ]

That is soo nice of u to make a video... I was thinking about making a video today to give some tips on how i deal with my hs but was planning on not showing my face. But i will show my face.... And u know y not make a t shirt? Hs is hereditary and i have a 2 yr old son who i hope doesnt have hs like i do. I want to raise awareness so my son doesnt have to suffer or b depressed or ashamed because i want a cure i wAnt something that will prevent these boils from appearing... I have HS! I dont wa

[ambda]

You made me cry. Thank you for the kindness and concern. I'm trying to fight, but after 20 years with nothing helping, it's hard to find the strength to continue.

[kk6downing]

OOOO you have sparkly lips 

[Ragnnar]

I, also, have lived with this for several years now, since I was 16. I am now 31. I can say that the information in this video is correct, except, for me, it's not generally painful, unless a lesion is formed, then it's debilitatingly painful, and those seem to be spurred by stress. Thank you for helping to raise awareness.

[stepherable]

Anyone who has one of these or bad acne needs to use a good quality turmeric. Look in the organic bulk seasoning section of your grocery. In some heated broth, about 6 oz, 1/2 teaspoon turmeric, cayenne pepper to taste, dash of blk pepper, teaspoon coconut oil.2-3 per day Yummy. And it will get these things under control. Google it! Try it! It will work - don't give up. Homeopathic hepar sulphuris calcareum 30c and belladonna30c and silicea 30c. these things will work for you too! hang in there