My First Video Of 2009 - An Update

I think muscle rippling occurs in both ME and LD and I get that too- I think the twitch looks as though there's a tiny frog under the skin that's jumping up n down.Another weird movement symptom I got was I was wiggling my toes and all the toes moved up n down simultaneously except for the 2nd largest toe which stayed still and upright- surely that's not normal.Your walking demo- that's how I walk on a good day.I worry that I'd never pass my DLA renewal medical if I walked to that extent:S

I am so sorry you have so much to bear at the moment. You are an inspiration because you are so strong, but I am sure God sent you your gorgeous grandson to help you through the months ahead, he is beautiful isnt he? God Bless you and your family.

Hi paul, sending you a hug if it's accepted. At one point with the ME I too started wondering if I was getting Parkinsons disease due to the hand tremors etc. I looked so much like a Parkinsons patient that when i was in hospital the nurses there all thought I had that. Fortunately that symtpom (like all my various coming and going symptoms esp when triggered) seems to be gone for the time being.

Im very sorry to hear about your recent losses. I hope this year is a much better one

Thank you. I am sure that the stress of the past few months must have some effect on my symptoms, but as I think you will agree this is different from saying that it has caused them. i will keep taking the ABX. I am encouraged that you saw results after 4 months. I might just need to give things time.

Thank you for the encouragement and prayers Lauren.

I do get night sweats and tingling in my arms and legs. But I also get muscle 'ripples', you can see the muscles rippling under my skin, usually in my legs, arms and hands.Fingers and toes will move on there own too.

Hi Paul, Thanks for continuing to keep us posted with the videos. Sorry to hear about your mother. Did you have a positive Lyme test? Or was it clinical? I can't remember but my questions is whether you have pronounced herx reactions from the antibiotics? If you do then you at least know its bacterial and most likely Lyme. Hang in there man!