Complex Regional Pain Syndrome

Awareness Video for CRPS/RSD.

Category:

Education

Tags:

• melgus99
• health
• neurology
• pain
• crps
• rsd
• complex
• regional
• syndrome
• reflex
• sympathetic
• dystrophy
• medicine
• media
• humanities

[92knicole]

A Question For Other Sufferers. Has This Set Off Any Other Disorders?? I Know Also Suffer IBS, Irritable Bowel Syndrome and Cant Eat Quite A Few Things! Its Hard

[melgus99]

@92knicole I have not had the connection confirmed, but IBS is caused by sympathetic nervous system dysfunction, like CRPS can be.... I have had IBS and bladder probs.

[92knicole]

I Have This And I Cried When I Saw This! I Never Knew The Right Words To Describe Everything And When I Was Diagnosed With This Many Of My Friends Abandoned Me Because I Am A "Freak" (Im Only 18) But Since I Posted This Link On My Facebook With The Comment "I couldnt have described my pain any better if i had written it myself" ! This Is Amazing As Much As It Is Sad! I Watch This Regularly Now As Support! Thank You! and God Bless You. I Feel If we Keep Praying We Will Be Healed One Day

[melgus99]

@92knicole keep praying, I have been given some relief and I owe it to the Lord and the people praying for me!! Never lose faith, in His time he will reveal His plan for you. Jeremiah 29.11 is a great verse!

God Bless

[Fanagmore]

Fantastic work!

[melgus99]

@Fanagmore Thank You!

I wrote this when I was in a flare up in the early hours of the morning, and it was a great experience to get it off my chest!! So a BIG thank you! It helped me to be able to express it all too! :) 

[klmullican]

@92knicole

I know how my son felt after seeing this video. Thankfully, the Lord has answered our prayers by setting him free from pain from a new medical treatment called the Calmare Pain Relief treatment that teaches the nerves to send a no-pain message instead of the pain message they've gotten stuck on. He's been pain-free and off meds since last June 2010, praise God! And so have four other people we've personally told about. Please Google Dr. D'Amato and Calmare Pain Relief. God bless

[pyke6220]

i was diagnosed 16 years ago and was just told yesterday that i was in stage five i just posted a video that was take on me i was the first person in the world to receive these new braces

[haleeeye5]

my friend was just diagnosed with this. she is only in seventh grade and is complete pain. i havent seen her in a long time and i miss her... im kinda scared too. this has helped me understand better about whats going on. thank you for making this it made me cry but thank you<3

[mhouse1712]

I am complex regional pain syndrome and I can attest to the horrible, burning, never-ending pain. I am on Fentanyl patches, Percocet, and Lyrica for the pain; all of this hardly works. I also have to take medication to sleep, but it barely works. Medical Science does not seem to have answers; it may never have the answers to this disorder.

What makes this worse is that those around each of us do not understand the pain we are in. My girlfriend always expects me to do stuff I cannot.

[ashleymccanncan]

Thank you for putting this video out there not enough people know what people suffer through. My mom has had RSD for 9 years. I see it becoming worse everyday. Its at the I don't look sick disease stage and most doctors have no clue what it is. I have made a documentary titled Pain on my channel please check it out. I'm helping to put out the fire.

[savvymaterialgirl]

I have this in my right arm / shoulder. I have been in hospital for 6 months and in intense physio therapy! i never was able to explain how much it hurt and everyone wonders why i am never at school etc. i was 14 when i was diagnosed, and i am now 15. the only way i can explain it is that my life is a little bit of hell :( lets hope we all heal!

[slowhandfan01]

@92knicole I have CRPS and also have IBS, like you. I also have "irritable bladder,: whereby I must make frequent trips to the bathroom. I have Fibromyalia, TMJ, frozen shoulder or "impingement syndrome," whichever one prefers. I have Narcolesy, which, like CRPS is an auto-immune syndrome. Yeah, my life's a real day at the beach.

[LNJR011]

I've just been diagnosed with CRPS. I've never heard about it until my doctor told me I had it and I did some research on the internet. I pray for myself and others that we don't have to suffer anymore. I pray that medications will help and I can go on with my life. I'm 47 years old and don't want to end up in a wheelchair. I still have the mentality of a teenager to walk an amusement park and go on a rollercoaster. Dear GOD, please help us ALL. Amen.

[josephkaeble]

I've had this for 28 years. To be made fun of for this is an outrage. To hear of kids poking a student with this, just to see him jump, it's sickening. Those kids need to live with RSD for a month. If somone poked my legs for their sick amusement, I'd break his neck. I often fear what an abuser could do to me if they knew I had this. They inflict agony without leaving a mark.. A nurse once scrubbed my affected feet in sheer rage.

[92knicole]

Aw The Similarities Are So Alike! Go to google and type in "mett the gardasil girls, kahlia from new zealand" its my story. mmine is believed to be set off by a vaccine as scarey as it is, this is my story before they diagnosed me! If you want to read my other article i got published email and let me know its all about my journey!