Micah and Addison's Story

Addison and Micah are fighting Duchenne Muscular Dystrophy. This is a story of their brave fight against the disease and how you can help them find a cure through Parent Project Muscular Dystrophy. Their families are working tirelessly to raise awareness and funds for critical research. There is more hope then ever before and the progress made in the last five years has accelerated the path to clinical trials and development of standards of care for Duchenne - but your help is still needed. We will not rest until we End Duchenne. http://www.parentprojectmd.org

Category:

People & Blogs

Tags:

• duchenne
• muscular
• dystrophy
• becker
• dmd
• parent
• project
• ppmd
• addison
• micah
• research
• awareness
• care

[bellenery]

They just told us(me and my sister) not to get married. I have now a family of my own, have 2 boys and 2 girls. I'm positive that my 2 boys didn't have the disease. The eldest is already 23 and the 2nd one is 17. But i fear for my 2 girls whom they said are carriers of the disease. How would i know if they are carriers?

[bellenery]

i didn't expect to see video clips on muscular dystrophy here in youtube. I know how painful to have loved ones who have this disease. My 3 brothers passed away because of this. We are 8 siblings, 3 girls and 5 boys. Our eldest died in 1977 at the age of 18. The 7th died in 1986, he was 16, and the last one died in 1989 and he was 19. One of the hospitals here in the Phils, took blood samples on us and made a study on our case in 1975. Have not heard any news of the study they conducted till now

[wwwLivingWithMDcom]

If you, or someone in your family has Muscular Dystrophy, Please check out

LivingWithMD(dot)com! It is my newly launched Muscular Dystrophy forums/site, i

intend for the community to grow at a good rate once i get the word out. So

if you are looking for somewhere to chat with people in a similar situation,

this is the place for you!

[ksalers4201]

that tore my heart right out of my chest. beautiful lil angels. God bless them both. i hope the best for them and your family. :'(

[missassyme15]

very lovly boys, my god bless them. I know how are it is bot stay positive becasue that is all we can do until there is a cure. I am always praying for my daughter, she is 12 years and has MD. My god bless both of you boys and may they both have happy days.

[CarlaOlivia6]

God Bless them. my little sister is battling Muscular Dystrophy. You can see her video under my latest videos to give you a better idea. They are amazing people battling tough diseases.

[MissTillyify]

My cousin suffers DMD and his 19. in a wheelchair and has to sleep with a breathing machine, when i watched your video it taught me alot more about DMD then i actually new. His 19 and may only live to his early 20's. I HAVEN'T got much time left with my cousin! its devestating.

[robmayben]

I am a teacher who works with kids with a WIDE range of abilities. I feel fortunate everyday to have the privledge of being part of their academic and social experiences. Please take a look at an assistive device I developed to help my kids continue to be included in academic and social settings. Take a look at the desktop desk on youtube. With all due respect, try to find the positives and know I will pray for you. Rob Mayben

[RAMASTOIfactory]

i think we might quit praying: god DOES NOT EXIST. Doctors are the only god i know, and they are the ones who can find the solution. the church refuses to study with stem cells, slowing the way to get the cure. i have LGMD type 2B, i know what i'm talking about. we need human support, no false spiritual expectatives.

P/s: life is a own experience, and its full of pretty things. I hope this two angels find and enjoy the positive things of life.

[tinkadust]

@DisneyPirate818 My nephew has this disease and i loive him as much as i always had . I ment that they want tgo be noticed so that acure can happen ... I dont want this disease to be accepted i want it researched . so my son and nephew can grow up the same and play football and do all the things we have talked about them doing.