Reno Nevada is NOTt wonderful!! I have been diagnosed with this for decades the last two bedridden only to have the doctor who was treatiing me for the last five years declare suddenly that I do not have this & now I am going off the pain medications that allows me to be able to get up and make it to the bathroom! Oh & the Whitemore institute does not see patients I have called them numerous times.Yet now I am told by other physicians that they DO but not covered my any insurance. How many lies?
@shirleytempleblues I feel the same, iv lost everything too. I dont hold out much hope for the future on finding a cure either. Not 1 person has ever even tryed to understand.
I’ve had FM/CFS (and now Chronic Pain/RSD) for over 30 years and very much want people to understand. Since I "look and even act fine some days", it seems to people that I’m a lazy bum. These illnesses can make you seem like you are lazy and just need a kick—when you really need a soft gentle hug, support and friends or family who try to understand. I lost everything and everyone I had. I am so glad the new generation will know more.
Reno Nevada is NOTt wonderful!! I have been diagnosed with this for decades the last two bedridden only to have the doctor who was treatiing me for the last five years declare suddenly that I do not have this & now I am going off the pain medications that allows me to be able to get up and make it to the bathroom! Oh & the Whitemore institute does not see patients I have called them numerous times.Yet now I am told by other physicians that they DO but not covered my any insurance. How many lies?
dawnten 6 days ago
@shirleytempleblues I feel the same, iv lost everything too. I dont hold out much hope for the future on finding a cure either. Not 1 person has ever even tryed to understand.
love and peace x
sallywags1 1 month ago
I’ve had FM/CFS (and now Chronic Pain/RSD) for over 30 years and very much want people to understand. Since I "look and even act fine some days", it seems to people that I’m a lazy bum. These illnesses can make you seem like you are lazy and just need a kick—when you really need a soft gentle hug, support and friends or family who try to understand. I lost everything and everyone I had. I am so glad the new generation will know more.
shirleytempleblues 6 months ago