Thymectomy and Myasthenia Gravis: A Clinical Challenge (MGTX)
Loading...
Loading...
11,332
Link to this comment:
Share to:
Uploader Comments (slucru)
see all
All Comments (21)
-
I was 19, am now 54, 35 years of MG. I climbed mountains and did hard work through hard work. Feel wore out now. There were ups and downs, almost remission-like at times. Now I feel as though I am prisoner of my laziness.
-
i just got out of the hospitel i had the thyectomy and im only 13
-
Am getting my thymectomy march 9 can't wait to get it over with.
-
hi was just wonting to know what changed doctors minds from you are lazy to you have MG.from things i have read i think my 19 year old daughter has MG but our doctor said no.dont know what to do but everthing she has points to MG.she walked,ran,etc until 13,now she even has problems chewing she will be 20 this year,
Loading...
- 3:33Preventing Stroke (Stroke #4)by illumistream22,429 views
Featured Video
- 3:56My Life with Myasthenia Gravisby Thekarinski6930,238 views
- 9:03Charlotte's Story - Thymus Gland - Embarrassing...by LaurenceBuddha562,303 views
- 3:16faces of myasthenia gravis - a bad dayby pajejoci13,256 views
- 4:55myastheniaby eyerounds27,014 views
- 2:18My Thymectomy 01-17-10by Thekarinski693,975 views
- 5:10Alana's Storyby glendaf39233,078 views
- 9:49Clinical Research and Treatment of Myasthenia G...by MGFI2,409 views
- 0:18Gabriela Sabatini - Spot I Miastenia Gravisby fundmg11,744 views
- 8:49Fatigue, Sleep and Myasthenia Gravisby VideoNewsService20,200 views
- 4:35Ocular MGby MGFI5,799 views
- 3:37miastenia gravis (iesch)by xcope1234598,403 views
- 2:10THYMECTOMY Video Demoby cyberwapx11,330 views
- 1:34Myasthenia Gravis Association of Greater Kansas...by calmvig1,964 views
- 2:13Kosh an Inspirationby slamburn7,154 views
- 5:35Myasthenia Gravisby MarshmellowPeepsYo11,337 views
- 7:10Myaesthenia Gravis: Presenting Featuresby USMLEVideoLecturesCK5,185 views
- 5:42Myasthenia Gravisby peixplain44,331 views
- 1:50Differential Diagnosis -Myasthenia Gravisby drmdk1,661 views
- 9:58Best natural support Myasthenia Gravis - Dr. Ra...by nutrimost711 views
I am 44 got diagnosed when I was 15. Had thymectony when I was 16, and now recieve IVIG every month in the hospital for 3 days. I have positive attitude, and have never been in remission..
facialsbyapril 1 year ago
@facialsbyapril I am so sorry to hear that you have had this kind of struggle. We are planning to do a clinical trial with IVIG in which patients administer the IVIG to themselves into the fat on their stomach every month. Let me know if you are interested in participating in a study like this.
slucru 1 year ago
@facialsbyapril I am so sorry to hear that you have had this kind of struggle. We are planning to do a clinical trial with IVIG in which patients administer the IVIG to themselves into the fat on their stomach every month. Let me know if you are interested in participating in a study like this.
slucru 1 year ago
@facialsbyapril Please provide me with your contact information, I can send the information to you in the mail so that you may read about it. There will be only three centers in the United States doing this, and I can let you know if you will be close to one. We will not be starting the study for several months. If you would prefer to speak with me by telephone, you can call me at 314-977-4871. Eve
slucru 1 year ago
Hi, how long have you had MG, and How long did it take you to recover from your thymectomy?
dshadow101 2 years ago
Did you get a response from Jenny? We forwarded your comment to her, and I will be happy to contact her if you did not receive a reply.
slucru 2 years ago