Natalie's Osteogenesis Imperfecta Treated at Hopkins Children's
Top Comments
All Comments (51)
-
The disease is called osteogenesis imperfecta
-
I have this bone disease also I have broken 197 bones and i am 13 years old
-
you are so lovely natelie , God bless you :)
-
i broke my wrist for the first time when i was 3
and broke lots of things after , till now
though i only have the mildest form of the brittle bone disease
but i do swim , ride bicycle , i love both , though keep the muscles
strong just walk a lot do some exercises with the muscles
my bones are still in a reasonable good condition !!!
oh and to be out in the sun is also very good , not to long
but sunlight contains natural vitamin D very important for the bones
-
there's a scary movie about children with this disease, does anybody know the name of it?
-
i ve broken 25 in two years plus i have a broken bone right now
-
DUDE!!?!?!?! I sang that song too!!! 'Would You Like To Swing On A Star' love singing that it's fun :D
I'm reading Handle With Care by Jodi Picoult. It's about a family raising a girl named Willow with osteogenesis imperfecta Type III. By the time she was 6 she broke 52 bones. She had severe type III. She broke 7 bones in the womb. and 2 more when she was born. And they say the sthrea or soemthing in her eyes flash unholy blue when she breaks a bone. And Natalie is one of the few to grow past 3 feet tall if she has type 3.
ThePingShowJL 1 year ago 27
Natalie, you have me so inspired today. I had fallen into such a sadness. I have OI Type I and II. I'm 43 and have survived over 189 broken bones. Baby girl you are so lovely and your spirit shines through in not only your eyes but also your parents. Sending love to your parents who chose to keep you in their lives. Mine did not. Continue to be blessed. And know that you have awoken me again. I feel braver today because of you.- With Love and blessings...-Shell
WarriorRadio 1 year ago 13