http://www.debra.org.au :: Rove McManus presents this extended video focusing on families and children living with EB in Australia. It is a confronting look into the private lives of these brave Butterfly Children and the parents who dedicate their lives to caring for them. You can help by donating to DebRA Australia to fund research into a cure. Go to www.debra.org.au today.
Thank you for making this video. It's good to see so many friends in one video. So many of them are members of ebfriends(dot)ning(dot)com . If you are dealing with EB feel free to join us there.
magicpez 2 years ago