Mitochondrial Disease
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Uploaded by fourgirls1boy4me on May 1, 2011
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Uploader Comments (fourgirls1boy4me)
All Comments (5)
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Beautifully done!! im a mito sufferer as well!! a cure needs to be found so every patient gets the treatment they need and deserve!!! Your kids are beautiful! It so good to see you guys are spreading awareness. Im a youth ambassador for the UMDf! every little bit counts!!!
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Amazing video!!! Thank you so much for sharing. My family has only recently been diagnosed with mito after having decades of misdiagnoses and being ignored by the medical community. Thank you for raising awareness. Having mito disease can be challenging to describe to others. Your video does a beautiful job weaving the technical info with real stories. I will keep your family in my thoughts and prayers. God bless!
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great video, you have a very sweet family.. I also found it very informative. However, not all is 'maternally' inherited. We lost our daughter in May 2009 to alpers and mtDNA depletion. We are both carriers and have a gene mutation that other wise would not cause issues unless paired with another carrier.. I believe a few other mito diseases are this way, caused by dual parental dna mutations..
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I'm sorry on your loss. We just need to find a cure.
fourgirls1boy4me 9 months ago
Hi there, When I posted this video on my FB..I did say this....
This is a video Kyra made about Mitochondrial Disease. This was a class project about her(in the beginning is all her friends and what she likes) and a Disease. I thought she and Kerri did an awesome job. Just a few mistakes that I caught, but couldn't change it and pronunciations.... I even have a hard time saying some of these...lol
This was the mistake I was talking about. She now know its more Nuclear disease.
fourgirls1boy4me 9 months ago