infantile spasms seizure
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Uploader Comments (marjorie0912)
All Comments (12)
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chink
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i start this therapy from when he was 7month old. and my son also having visual problem same like your angel. so we are there world explain them everything where they are and talk to them as much as you can. when they are awake give them more auditory stimulation so that they will not feel alone. without seeing anything for them how hard it will think this. and help her. please. with the special exercises
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special therapy .. means you have to give her the exercises everyday. like teach her sitting, holding, standing etc. ask for the professionals to do it. you can learn from the special therapist these exercises. and you can do it by yourself. i am sure your little angel will learn and this is the only big help you can do for your child for now. so that i am doing for my son this exercises. you know what he can sit with support and stand with support too.
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Hi, my son is 1 year 2 month old now . He got this seizures when he was 6month old . He got this because of hypoglycemia. But we found that if the child get seizures it will stop by its own. nothing can stop that. so i would like tell you that give your child this special therapy .
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hi
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ThIS maDE me CRy .....3 MonTHS AgO my DAUgHTer STARtED HAVIng SEIzuRes AND EVER siNCE tHEN i HAVENt seen HER SMILE AGAIn EITHEIR .i Am A LuckY mOTHER as WELL tO have mY pRIncess..
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GOD help you, since he is the ONLY one who can heal your little angle...
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@MrMilan: i know the feelling.. unfortunately, she is turning 3 this feb 4 and she still suffering from this seizures. we tried every medicine that we could give but none work so far.. Theres nothing we can do but to give the best love we can give to her... God bless your princess.
marjorie0912 1 year ago
God bless this beautiful child and God bless you. my granddaughter suffered from infantile spasms and thank goodness, after a proper diagnosis at the Cleveland Clinic Children's Hospital, the ACTH 7-months of a dialy injection, she is cured... or so we hope. kenadi is two and functions at about a 3 to 4 month level. she is the joy in my life, the color of my rainbow and i thank God every day for this gift. boy, have we all been humbled and still rejoice. blessings to you and yours.
majaken4 1 year ago
@majaken4 : We already tried the ACTH but unfortuantely it didnt help her seizure... shes turning 3 yrs old this coming feb 4 and shes stll functioning like a 1 month old baby.. You are right i thank God everyday that she gave me my princess and gave me the opportunity to give her all the love i can give as her mommy. God bless you and your baby boy.
marjorie0912 1 year ago