PotsyRN intro

Short, first vlog. Intro to a bit of what I have and deal with.

Category:

People & Blogs

Tags:

• Pots
• Dysautonomia
• RN
• TransverseMyelitis

[SheWhoFeels]

Oh man. You're a figure skating coach too? How awesome! I used to skate. Miss that too. How are you doing pain management wise? That can be such a challenge. I find my pain management is correlated w/ my dysautonomia which is weird! What kind of research do you do now? I hope your day went okay! I know you had a rough night. *hugs* Much love! Xoxox

[marieked]

@SheWhoFeels yes, I was competing/skating/coaching in the afternoons and weekends, in the mornings I taught pre-k from 8-1. I take Lyrica and low dose tricyclic antidepressants for nerve pain. It's not foolproof, but it works enough most of the time.

[POTSieChik]

Great to meet you! I can't believe you finished school and were working 12 hour shifts!! Bleehh, I was working those when I first started exhibiting symptoms and felt like crap all the time. You go girl. Hope you to hear more from you soon!!

[marieked]

@POTSieChik yeah, I started school Fall of 2005, by Fall of 2006 I started having more problems keeping weight on, passing out, tired.. went through the whole ANS testing for POTS and dysmotility. I was "normal" but borderline. That's when I started on Florinef and Midodrine for my BP. I had had GI issues in winter 2005 (6 months before nsg school started), spent 3 weeks in hospital going through tests...

[FlyinHyy]

Hey! Hugs! Great to see you on here! Hope today is better!

[marieked]

@FlyinHyy thank you! yes better today :)

[missnikkiann]

Yay! I'm a 36yo dysautonomics, as well. Thanks for sharing your story with us.

[SheWhoFeels]

Nofair so much ice time! ^_^ I miss skating a lot. I was competing etc also but when we moved I was 2hours from the nearest rink & slowly lost it all. :/ Ah well. I am glad Lyrica & TCAs are helping your neuropathy. Pain management is so critical for us! Request: Will you tell us your whole illness story? Much love sweetheart! <3

[hotsypotsymamaof2]

Hello, nice to meet you. I am in healthcare also. I do physical therapy homecare a couple days a week since that min the standing. I can no longer work in house. I have had pots about one yr next month. It hit me like a freight train last winter after ebv maybe? still looking for answers. poss mito, or autoimmune. Hope you feel better soon. Most times I push myself way too much and pay price there after.

[GallopingCloud]

Welcome to the vlogging world, Marieke! :) I look forward to watching your vids!