NFA President's Message - Update on the NFA
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I'm not sure why there are so many interestingly "special" comments on here to this video. I am a fibromyalgia/ CFS sufferer who was diagnosed when I was in my 20's and am thankful for the NFA. More members of the medical community should continue to be educated on these and related illnesses. However, I don't think doctors can do anything to help the ppl who are leaving insane comments on here. What are you ppl even doing on here? lol. Anyway, thank you so much, Lynne!!
Tempe206 10 months ago
The NFA earned the reputation as being a money focused organization who's primary goal was to make money off of patients in cause related marketing arrangements with their various business partners. I heard they now face, or faced, at least two multi-million dollar lawsuits from large pharmaceutical firms. Was there malfeasance there as well? Did this force them out of business? Patient organizations should focus on patients, not cause related marketing (selling things to patients...).
fillitout 10 months ago
@lynneisfake What the heck has this to do with god and satan ??simple if you dont understand fibro check out other you tube channels...
patrick45sue 10 months ago
I hope you can continue to educate people, like lallerb, to understand what our pain does to us. We fight our bodies to be able to live some kind of life. I wish you sucess with the new company and continuing sucess to NFL. Thanks for all the help.
judi
mcjudi45 10 months ago
@lynneisfake I have to say you seem like the crazy person coming out of left field. I have no idea what you're commenting on, or what your point of reference is. It just looks like a random attack for no reason. What's the point of your posting, and why do you feel that way?
lallerb 10 months ago
Hurry Lynne, as you know the Rented Knee brace has to be back to U.S. Rentals in the morning... She only has the disease that is lead in the rump!! She spent all the money traveling around with her friends.. She is so full of it!! This surgery on her knee was planned and not an accident! Please give your money to the Television preachers, not to Satan!!
Her head should be on a Coo coo clock.. She is cracked!!
Oh this lady really needs help...Or a straight jacket ! ! ! !
Stay in the attic..
lynneisfake 11 months ago
You rock! I appreciate the update even though I am a little late with this response! You have always been a light in the fibromyalgia community and I respect your decision! If there is anything I can do to help let me know! You are a beautiful person with a beautiful soul! Thank you for everything you have done and everything you are going to do in the future! THANK YOU!
FibroTV 11 months ago
Thank you for the update. I will be updating our Library's information resources about Fibromyalgia to include the "new" organization info, etc. I also hope the magazine comes back, even if only digital.
ETSubmariner 11 months ago